Adrenomyeloneuropathy

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What is adrenomyeloneuropathy?

Adrenomyeloneuropathy, a milder form of adrenoleukodystrophy (X-ALD), is a rare inherited disorder that begins in adolescence or adulthood. It is characterized by spinal cord dysfunction with progressive stiffness and weakness of the legs, abnormal sphincter muscle control, and sexual dysfunction.

Common symptoms reported by people with adrenomyeloneuropathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for adrenomyeloneuropathy

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Got a question about living with adrenomyeloneuropathy? Members in the forum might have the answers.

Compare treatments taken by people with adrenomyeloneuropathy

Let’s build this page together! When you share what it’s like to have adrenomyeloneuropathy through your profile, those stories and data appear here too.

Got a question about living with adrenomyeloneuropathy? Members in the forum might have the answers.

Who has adrenomyeloneuropathy on PatientsLikeMe?

  • 0 new patients joined this month
  • 24 say adrenomyeloneuropathy is their primary condition

Age
Age Proportion # of patients
<20 1
20s 0
30s 5
40s 11
50s 9
60s 0
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 2
30-39 years 3
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 20
Female 7

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9
Not Diagnosed 0

These charts show data from adrenomyeloneuropathy patients who have completed their condition history
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