Adrenomyeloneuropathy
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What is adrenomyeloneuropathy?
Adrenomyeloneuropathy, a milder form of adrenoleukodystrophy (X-ALD), is a rare inherited disorder that begins in adolescence or adulthood. It is characterized by spinal cord dysfunction with progressive stiffness and weakness of the legs, abnormal sphincter muscle control, and sexual dysfunction.
Common symptoms reported by people with adrenomyeloneuropathy
Treatments taken by people for adrenomyeloneuropathy
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Compare treatments taken by people with adrenomyeloneuropathy
Let’s build this page together! When you share what it’s like to have adrenomyeloneuropathy through your profile, those stories and data appear here too.
Got a question about living with adrenomyeloneuropathy? Members in the forum might have the answers.
Who has adrenomyeloneuropathy on PatientsLikeMe?
- 0 new patients joined this month
- 24 say adrenomyeloneuropathy is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 0 | |
| 30s | 5 | |
| 40s | 11 | |
| 50s | 9 | |
| 60s | 0 | |
| 70+ | 1 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 2 | |
| 30-39 years | 3 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 20 | |
| Female | 7 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 9 | |
| Not Diagnosed | 0 |