Crouzon syndrome

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What is Crouzon syndrome?

Crouzon syndrome affects babies during early development, it is the early fusion (premature) of the skull bones. This affects the shape of the head and face. As a result, it can affect hearing (misshapen ear canals) and the teeth (misshaped jaw).

Common symptoms reported by people with Crouzon syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Crouzon syndrome

No data

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Compare treatments taken by people with Crouzon syndrome

No data

Let’s build this page together! When you share what it’s like to have Crouzon syndrome through your profile, those stories and data appear here too.

Got a question about living with Crouzon syndrome? Members in the forum might have the answers.

Who has Crouzon syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 0
30s 1
40s 0
50s 0
60s 0
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

50% Female
50% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 0

These charts show data from Crouzon syndrome patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have Crouzon syndrome through your profile, those stories and data appear here too.

Got a question about living with Crouzon syndrome? Members in the forum might have the answers.