What is POEMS syndrome?
POEMS stands for: Polyneuropathy (peripheral nerve damage), Organomegaly (enlargement of organs), Endocrinopathy (damage to hormone-producing glands) or Edema, M-protein (antibody) and Skin abnormalities (including hyperpigmentation). At least two of these conditions are needed for POEMS diagnosis.
How do members experience POEMS syndrome?
Top 5 symptoms reported by people with POEMS syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for POEMS syndrome*
Who has POEMS syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 1 | |
| 30s | 2 | |
| 40s | 4 | |
| 50s | 7 | |
| 60s | 5 | |
| 70+ | 4 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 6 | |
| Female | 17 |