Periventricular heterotopia

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What is periventricular heterotopia?

Heterotopia (displacement from normal position) periventricular (sides of ventricles) is a rare genetic condition in which the fetus' (unborn baby's) nerve cells fail move to the correct part of the brain, causing seizure activity usually beginning during the teenage years.

Common symptoms reported by people with periventricular heterotopia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with periventricular heterotopia

No data

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Got a question about living with periventricular heterotopia? Members in the forum might have the answers.

Compare treatments taken by people with periventricular heterotopia

No data

Let’s build this page together! When you share what it’s like to have periventricular heterotopia through your profile, those stories and data appear here too.

Got a question about living with periventricular heterotopia? Members in the forum might have the answers.

Who has periventricular heterotopia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 3
30s 1
40s 1
50s 2
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 0
Female 10

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7
Not Diagnosed 0

These charts show data from periventricular heterotopia patients who have completed their condition history
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