What is periventricular heterotopia?
Heterotopia (displacement from normal position) periventricular (sides of ventricles) is a rare genetic condition in which the fetus' (unborn baby's) nerve cells fail move to the correct part of the brain, causing seizure activity usually beginning during the teenage years.
How do members experience periventricular heterotopia?
Top 5 symptoms reported by people with periventricular heterotopia*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for periventricular heterotopia*
Who has periventricular heterotopia on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 4 | |
| 20s | 3 | |
| 30s | 7 | |
| 40s | 3 | |
| 50s | 3 | |
| 60s | 0 | |
| 70+ | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 5 | |
| Female | 16 |