Autoimmune hepatitis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is autoimmune hepatitis?

Autoimmune hepatitis is a disease of the liver that is caused by the production of antibodies by the immune system. These antibodies attack the liver cells which can lead to liver damage, including cirrhosis of the liver.

Common symptoms reported by people with autoimmune hepatitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with autoimmune hepatitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
14
Tried for
autoimmune hepatitis (14)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
9
Tried for
autoimmune hepatitis (9)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Purinethol)
Type
Prescription Drug
How many have tried
2
Tried for
autoimmune hepatitis (2)
Treatment name(s)

(Methadose)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(R-lipoic Acid)
Type
Supplement
How many have tried
1
Tried for
autoimmune hepatitis (1)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with autoimmune hepatitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with autoimmune hepatitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Imuran)
Perceived effectiveness
for autoimmune hepatitis (2 evaluations)
Side effects
hair loss
Total evaluations
2
Tried for
autoimmune hepatitis (14)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for autoimmune hepatitis (5 evaluations)
Side effects
dizziness and feeling faint hair loss 9 more
Total evaluations
5
Tried for
autoimmune hepatitis (9)
Treatment name(s)

(Ativan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (2)
Treatment name(s)

(Purinethol)
Perceived effectiveness
for autoimmune hepatitis (2 evaluations)
Side effects
nausea
Total evaluations
2
Tried for
autoimmune hepatitis (2)
Treatment name(s)

(Methadose)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(R-lipoic Acid)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
autoimmune hepatitis (1)
Treatment name(s)

(Adderall)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Abilify)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
depressed mood fatigue 2 more
Total evaluations
2
Tried for
anxious mood (1)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with autoimmune hepatitis, who reported starting treatments within the last 5 years.
Last updated:

Who has autoimmune hepatitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 8
20s 22
30s 47
40s 62
50s 96
60s 52
70+ 12
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 24
20-29 years 14
30-39 years 20
40-49 years 23
50-59 years 19
60-69 years 3
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 36
Female 264

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 155
Not Diagnosed 5

These charts show data from autoimmune hepatitis patients who have completed their condition history
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