Primary sclerosing cholangitis

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What is primary sclerosing cholangitis?

Primary sclerosing cholangitis is a chronic, autoimmune inflammatory liver disorder characterized by narrowing and scarring of the lumen of the bile ducts. It is often seen in patients with ulcerative colitis.

Common symptoms reported by people with primary sclerosing cholangitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with primary sclerosing cholangitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Questran)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Purinethol)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Serax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with primary sclerosing cholangitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with primary sclerosing cholangitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Questran)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Treatment name(s)

(Ativan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (2)
Treatment name(s)

(Abilify)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for primary sclerosing cholangitis (1 evaluation)
Side effects
excessive dry mouth high feeling
Total evaluations
1
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
depressed mood fatigue 2 more
Total evaluations
2
Tried for
anxious mood (1)
Treatment name(s)

(Prozac)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Purinethol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Serax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with primary sclerosing cholangitis, who reported starting treatments within the last 5 years.
Last updated:

Who has primary sclerosing cholangitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 13
30s 37
40s 27
50s 26
60s 16
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 16
30-39 years 9
40-49 years 8
50-59 years 2
60-69 years 1
70+ years 0

Sex

Distribution of sex

57% Female
43% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 74
Not Diagnosed 4

These charts show data from primary sclerosing cholangitis patients who have completed their condition history
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