What is primary biliary cholangitis?

Primary biliary cholangitis (PBC), previously referred to as primary biliary cirrhosis, is a chronic disease of the small intrahepatic bile ducts that is characterized by progressive bile duct damage and eventual loss.

How do members experience primary biliary cholangitis?

Top 5 symptoms reported by people with primary biliary cholangitis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for primary biliary cholangitis*

*Data from patients with primary biliary cholangitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with primary biliary cholangitis*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(UDCA Ursodeoxycholic acid)
Perceived effectiveness
for primary biliary cholangitis (1 evaluation)
Side effects
Total evaluations
1
Tried for
primary biliary cholangitis (2)

*Data from patients with primary biliary cholangitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has primary biliary cholangitis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 5
30s 17
40s 25
50s 69
60s 86
70+ 74

Distribution of sex

Sex

Sex Proportion # of patients
Male 33
Female 248