Facioscapulohumeral muscular dystrophy

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What is facioscapulohumeral muscular dystrophy?

Facioscapulohumeral muscular dystrophy An autosomal dominant disorder affecting the skeletal muscles of the face, scapula, and upper arm characterized by muscle weakness in these anatomic areas. The muscle weakness eventually spreads to other skeletal muscles as well.

Common symptoms reported by people with facioscapulohumeral muscular dystrophy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with facioscapulohumeral muscular dystrophy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Supplement
How many have tried
1
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
1
Treatment name(s)

(Ubiquinol CoQH)
Type
Supplement
How many have tried
1

Data from patients with facioscapulohumeral muscular dystrophy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with facioscapulohumeral muscular dystrophy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for facioscapulohumeral muscular dystrophy (1 evaluation)
Side effects
stiffness
Total evaluations
1
Treatment name(s)

(Ubiquinol CoQH)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with facioscapulohumeral muscular dystrophy, who reported starting treatments within the last 5 years.
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Who has facioscapulohumeral muscular dystrophy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 7
30s 8
40s 9
50s 11
60s 10
70+ 6
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 17
20-29 years 3
30-39 years 5
40-49 years 1
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 27
Female 28

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33
Not Diagnosed 1

These charts show data from facioscapulohumeral muscular dystrophy patients who have completed their condition history
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