Polycystic Liver Disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Polycystic Liver Disease?

Polycystic Liver Disease is inherited either with liver cysts alone or with both liver and kidney cysts. The liver tissue becomes infused with cysts, resulting in a hardening of the liver texture.

Common symptoms reported by people with Polycystic Liver Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Polycystic Liver Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Myochrysine)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)

Data from patients with Polycystic Liver Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Polycystic Liver Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Myochrysine)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
How many evaluations
2
Tried for
Pain (1)

Data from patients with Polycystic Liver Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Polycystic Liver Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 2
40s 7
50s 10
60s 8
70+ 1

Sex

Distribution of sex

87% Female
13% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 1
30-39 years 2
40-49 years 3
50-59 years 1
60-69 years 1
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 18
Not Diagnosed 0

These charts show data from Polycystic Liver patients who have completed their condition history
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