Glomus tympanicum jugulare paraganglioma

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What is glomus tympanicum jugulare paraganglioma?

A benign tumor growth near the middle ear that can extend down the jaw and neck region. Since the tumor is pressing on the middle ear, patients may experience: hearing changes or loss, difficulty swallowing, dizziness, hoarseness, and/or facial pain.

Common symptoms reported by people with glomus tympanicum jugulare paraganglioma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with glomus tympanicum jugulare paraganglioma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Stomach tumor removal/resection)
Type
Surgery
How many have tried
3
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with glomus tympanicum jugulare paraganglioma, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with glomus tympanicum jugulare paraganglioma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Stomach tumor removal/resection)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
drowsiness
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Percocet)
Perceived effectiveness
for pain (1 evaluation)
Side effects
constipation
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with glomus tympanicum jugulare paraganglioma, who reported starting treatments within the last 5 years.
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Who has glomus tympanicum jugulare paraganglioma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 3
40s 5
50s 10
60s 2
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 3
30-39 years 1
40-49 years 2
50-59 years 2
60-69 years 1
70+ years 0

Sex

Distribution of sex

85% Female
15% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 11
Not Diagnosed 0

These charts show data from glomus tympanicum jugulare paraganglioma patients who have completed their condition history
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