Non-celiac gluten intolerance

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What is non-celiac gluten intolerance?

Gluten intolerance refers to digestive issues in which gluten is not able to be properly absorbed and may damage the the lining of the small intestine. It is a characteristic of Celiac Disease and is known as Non-Celiac Gluten Sensitivity in patients who do not have Celiac Disease.

Common symptoms reported by people with non-celiac gluten intolerance

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with non-celiac gluten intolerance

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Burgen Gluten Free Bread)
Type
Nutrition/Diet
How many have tried
20
Tried for
non-celiac gluten intolerance (20) pain (1)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (4)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Spinal Chiropractic Therapy)
Type
Physical Therapy
How many have tried
3
Tried for
pain (3) fatigue (1)
Treatment name(s)

(DHEA cream)
Type
Supplement
How many have tried
3
Tried for
fatigue (3) depressed mood (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (3)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (2) pain (2)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)

Data from patients with non-celiac gluten intolerance, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with non-celiac gluten intolerance

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Burgen Gluten Free Bread)
Perceived effectiveness
for non-celiac gluten intolerance (9 evaluations)
Side effects
craving sweets sudden blasts of hunger
Total evaluations
9
Tried for
non-celiac gluten intolerance (20) pain (1)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
drowsiness
Total evaluations
5
Tried for
anxious mood (4)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
sleepiness
Total evaluations
4
Tried for
anxious mood (3)
Treatment name(s)

(Spinal Chiropractic Therapy)
Perceived effectiveness
for pain (2 evaluations)
Side effects
none
Total evaluations
2
Tried for
pain (3) fatigue (1)
Treatment name(s)

(DHEA cream)
Perceived effectiveness
for fatigue (3 evaluations)
Side effects
Total evaluations
3
Tried for
fatigue (3) depressed mood (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (4 evaluations)
Side effects
brain fog diarrhea
Total evaluations
4
Tried for
depressed mood (3)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
shakiness
Total evaluations
2
Tried for
anxious mood (3)
Treatment name(s)

(Prozac)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
head pain
Total evaluations
4
Tried for
depressed mood (2) pain (2)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (6 evaluations)
Side effects
drowsiness anxious mood
Total evaluations
5
Tried for
pain (3)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (1 evaluation)
Side effects
itching
Total evaluations
1
Tried for
pain (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with non-celiac gluten intolerance, who reported starting treatments within the last 5 years.
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Who has non-celiac gluten intolerance on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 42
30s 96
40s 105
50s 91
60s 53
70+ 19
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 64
20-29 years 64
30-39 years 40
40-49 years 30
50-59 years 19
60-69 years 5
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 74
Female 336

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 181
Not Diagnosed 98

These charts show data from non-celiac gluten intolerance patients who have completed their condition history
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