Non-celiac gluten intolerance

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What is non-celiac gluten intolerance?

Gluten intolerance refers to digestive issues in which gluten is not able to be properly absorbed and may damage the the lining of the small intestine. It is a characteristic of Celiac Disease and is known as Non-Celiac Gluten Sensitivity in patients who do not have Celiac Disease.

Common symptoms reported by people with non-celiac gluten intolerance

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with non-celiac gluten intolerance

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Burgen Gluten Free Bread)
Type
Nutrition/Diet
How many have tried
23
Tried for
non-celiac gluten intolerance (23) Pain (1)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
4
Tried for
Anxious mood (4) Insomnia (1)
Treatment name(s)

(Spinal Chiropractic Therapy)
Type
Physical Therapy
How many have tried
4
Tried for
Pain (4) Fatigue (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
4
Tried for
Anxious mood (4) Depressed mood (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
4
Tried for
Pain (4)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
3
Tried for
Insomnia (2) Depressed mood (1)
1 more
Treatment name(s)

(DHEA cream)
Type
Supplement
How many have tried
3
Tried for
Fatigue (3) Depressed mood (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (3)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (3) Depressed mood (1)
Treatment name(s)

(Nature's Bounty Melatonin)
Type
Supplement
How many have tried
3
Tried for
Insomnia (3)

Data from patients with non-celiac gluten intolerance, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with non-celiac gluten intolerance

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Burgen Gluten Free Bread)
Perceived effectiveness
for non-celiac gluten intolerance (12 evaluations)
Side effects
Craving sweets Sudden blasts of hunger
Total evaluations
12
Tried for
non-celiac gluten intolerance (23) Pain (1)
Treatment name(s)

(Xanax)
Perceived effectiveness
for Anxious mood (4 evaluations)
Side effects
Drowsiness
Total evaluations
5
Tried for
Anxious mood (4) Insomnia (1)
Treatment name(s)

(Spinal Chiropractic Therapy)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
None
Total evaluations
4
Tried for
Pain (4) Fatigue (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for Anxious mood (2 evaluations)
Side effects
Black diarrhea Hunger 4 more
Total evaluations
3
Tried for
Anxious mood (4) Depressed mood (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (6 evaluations)
Side effects
Drowsiness Anxious mood
Total evaluations
5
Tried for
Pain (4)
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Increased or worsened depression
Total evaluations
1
Tried for
Insomnia (2) Depressed mood (1)
1 more
Treatment name(s)

(DHEA cream)
Perceived effectiveness
for Fatigue (3 evaluations)
Side effects
Total evaluations
3
Tried for
Fatigue (3) Depressed mood (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Itching all over
Total evaluations
1
Tried for
Pain (3)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Perceived effectiveness
for Pain (5 evaluations)
Side effects
Feel very relaxed Happiness 1 more
Total evaluations
5
Tried for
Pain (3) Depressed mood (1)
Treatment name(s)

(Nature's Bounty Melatonin)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Increased anxiety
Total evaluations
1
Tried for
Insomnia (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with non-celiac gluten intolerance, who reported starting treatments within the last 5 years.
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Who has non-celiac gluten intolerance on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 38
30s 94
40s 87
50s 81
60s 50
70+ 15
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 63
20-29 years 60
30-39 years 39
40-49 years 26
50-59 years 18
60-69 years 4
70+ years 0

Sex

Distribution of sex

82% Female
18% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 161
Not Diagnosed 96

These charts show data from non-celiac gluten intolerance patients who have completed their condition history
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