Hereditary chronic pancreatitis

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What is hereditary chronic pancreatitis?

Hereditary Chronic Pancreatitis is an early onset, persistent or recurring inflammation of the pancreas that can result in permanent structural damage and impaired pancreatic function.

Common symptoms reported by people with hereditary chronic pancreatitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hereditary chronic pancreatitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Codeine Contin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Ritalin)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Morphine ER)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Naprosyn)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Creon)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with hereditary chronic pancreatitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hereditary chronic pancreatitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
tiredness
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Codeine Contin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
constipation
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Ritalin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Morphine ER)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Naprosyn)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Creon)
Perceived effectiveness
for hereditary chronic pancreatitis (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Lyrica)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hereditary chronic pancreatitis, who reported starting treatments within the last 5 years.
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Who has hereditary chronic pancreatitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 5
30s 9
40s 17
50s 23
60s 12
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 7
20-29 years 10
30-39 years 8
40-49 years 7
50-59 years 6
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 15
Female 58

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 42
Not Diagnosed 2

These charts show data from hereditary chronic pancreatitis patients who have completed their condition history
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