Raynaud's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Raynaud's disease?

Raynaud's disease is a vascular disorder characterized by ischemic attacks called, Raynaud's phenomenon, in the fingers, toes, ears, or nose, associated with pain and pallor. The attacks occur during exposure to cold temperatures or stress.

Common symptoms reported by people with Raynaud's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Raynaud's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Norvasc)
Type
Prescription Drug
How many have tried
24
Tried for
Raynaud's disease (24)
Treatment name(s)

(Procardia XL)
Type
Prescription Drug
How many have tried
19
Tried for
Raynaud's disease (19)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
18
Tried for
pain (17) anxious mood (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
14
Tried for
pain (14)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
11
Tried for
depressed mood (9) anxious mood (6)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
10
Tried for
pain (10)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
9
Tried for
depressed mood (9) pain (2)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
8
Tried for
pain (7) depressed mood (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
8
Tried for
pain (8)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
8
Tried for
pain (8)

Data from patients with Raynaud's disease, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Raynaud's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Norvasc)
Perceived effectiveness
for Raynaud's disease (11 evaluations)
Side effects
swelling in legs, feet and ankles dizziness 3 more
Total evaluations
13
Tried for
Raynaud's disease (24)
Treatment name(s)

(Procardia XL)
Perceived effectiveness
for Raynaud's disease (4 evaluations)
Side effects
dizziness flushing 1 more
Total evaluations
4
Tried for
Raynaud's disease (19)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (7 evaluations)
Side effects
burning sensation dizziness 5 more
Total evaluations
7
Tried for
pain (17) anxious mood (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (14 evaluations)
Side effects
sleepiness brain fog 10 more
Total evaluations
14
Tried for
pain (14)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for depressed mood (7 evaluations)
Side effects
chronic constipation cognitive confusion 10 more
Total evaluations
9
Tried for
depressed mood (9) anxious mood (6)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (11 evaluations)
Side effects
drowsiness excessive daytime sleepiness (somnolence) 1 more
Total evaluations
10
Tried for
pain (10)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (16 evaluations)
Side effects
constant tiredness dizziness 4 more
Total evaluations
17
Tried for
depressed mood (9) pain (2)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (4 evaluations)
Side effects
increased sleepiness
Total evaluations
4
Tried for
pain (7) depressed mood (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (8 evaluations)
Side effects
constipation drowsiness
Total evaluations
8
Tried for
pain (8)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (8)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Raynaud's disease, who reported starting treatments within the last 5 years.
Last updated:

Who has Raynaud's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 135
30s 383
40s 690
50s 641
60s 356
70+ 82
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 331
20-29 years 275
30-39 years 386
40-49 years 257
50-59 years 111
60-69 years 26
70+ years 5

Distribution of sex

Sex
Sex Proportion # of patients
Male 124
Female 2162

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1754
Not Diagnosed 102

These charts show data from Raynaud's disease patients who have completed their condition history
Last updated: