Tarlov cyst

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What is Tarlov cyst?

Tarlov cysts are sacs filled with cerebrospinal fluid that most often affect nerve roots in the sacrum, the group of bones at the base of the spine.

Common symptoms reported by people with Tarlov cyst

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Tarlov cyst

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)
Type
Surgery
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Flector Patch)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)

Data from patients with Tarlov cyst, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Tarlov cyst

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
for pain (2 evaluations)
Side effects
daytime tiredness
Total evaluations
2
Tried for
pain (2)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
excessive dry mouth
Total evaluations
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
headaches rebound migraines
Total evaluations
2
Tried for
fatigue (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Flector Patch)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Prozac)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Tarlov cyst, who reported starting treatments within the last 5 years.
Last updated:

Who has Tarlov cyst on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 5
30s 27
40s 33
50s 43
60s 25
70+ 6
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 4
30-39 years 13
40-49 years 13
50-59 years 6
60-69 years 3
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 5
Female 144

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 63
Not Diagnosed 1

These charts show data from Tarlov cyst patients who have completed their condition history
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