Burning mouth syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is burning mouth syndrome?

Burning mouth syndrome has been defined as burning pain in the tongue or oral mucous membranes, usually without accompanying clinical and laboratory findings. The cause of burning mouth syndrome often can't be determined.

Common symptoms reported by people with burning mouth syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with burning mouth syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
4
Tried for
burning mouth syndrome (3) Pain (2)
Treatment name(s)

(R-lipoic Acid)
Type
Supplement
How many have tried
2
Tried for
burning mouth syndrome (2)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
2
Tried for
burning mouth syndrome (1) Pain (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
2
Tried for
burning mouth syndrome (2)
Treatment name(s)

(Spinal Chiropractic Therapy)
Type
Physical Therapy
How many have tried
1
Tried for
Pain (1)
Treatment name(s)
Type
Nutrition/Diet
How many have tried
1
Tried for
burning mouth syndrome (1)
Type
Prescription Drug
How many have tried
1
Tried for
burning mouth syndrome (1)
Treatment name(s)

(Duragesic-50)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
burning mouth syndrome (1)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)

Data from patients with burning mouth syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with burning mouth syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for burning mouth syndrome (5 evaluations)
Side effects
confusion drowsiness 2 more
Total evaluations
6
Tried for
burning mouth syndrome (3) Pain (2)
Treatment name(s)

(R-lipoic Acid)
Perceived effectiveness
for burning mouth syndrome (4 evaluations)
Side effects
Total evaluations
5
Tried for
burning mouth syndrome (2)
Treatment name(s)

(Elavil)
Perceived effectiveness
for burning mouth syndrome (1 evaluation)
Side effects
Total evaluations
1
Tried for
burning mouth syndrome (1) Pain (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for burning mouth syndrome (4 evaluations)
Side effects
Total evaluations
4
Tried for
burning mouth syndrome (2)
Treatment name(s)

(Spinal Chiropractic Therapy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
burning mouth syndrome (1)
Perceived effectiveness
for burning mouth syndrome (1 evaluation)
Side effects
blood in stool
Total evaluations
1
Tried for
burning mouth syndrome (1)
Treatment name(s)

(Duragesic-50)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
Pain (1)
Treatment name(s)
Perceived effectiveness
for burning mouth syndrome (1 evaluation)
Side effects
Total evaluations
1
Tried for
burning mouth syndrome (1)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
constipation
Total evaluations
1
Tried for
Pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with burning mouth syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has burning mouth syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 3
30s 4
40s 17
50s 43
60s 44
70+ 17
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 1
30-39 years 10
40-49 years 13
50-59 years 26
60-69 years 6
70+ years 2

Sex

Distribution of sex

87% Female
13% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 52
Not Diagnosed 18

These charts show data from burning mouth syndrome patients who have completed their condition history
Last updated: