Mitochondrial myopathy

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What is mitochondrial myopathy?

Mitochondrial myopathies are a group of neuromuscular diseases caused by damage to the mitochondria which are small, energy-producing structures that serve as the cells' "power plants."

Common symptoms reported by people with mitochondrial myopathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with mitochondrial myopathy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Supplement
How many have tried
3
Tried for
mitochondrial myopathy (3)
Treatment name(s)

(CoQ10 Soft Gels)
Type
Supplement
How many have tried
2
Tried for
mitochondrial myopathy (2) fatigue (1)
Treatment name(s)

(Kre-Alkalyn creatine)
Type
Supplement
How many have tried
2
Tried for
mitochondrial myopathy (2)
Treatment name(s)

(Carnitor)
Type
Supplement
How many have tried
2
Tried for
fatigue (2) mitochondrial myopathy (2)
Treatment name(s)

(Vitamin C with Rose Hips)
Type
Supplement
How many have tried
2
Tried for
mitochondrial myopathy (2)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1) mitochondrial myopathy (1)
Treatment name(s)

(Jarrows Formulas Creatine Monohydrate)
Type
Supplement
How many have tried
1
Tried for
mitochondrial myopathy (1)
Treatment name(s)

(Pristiq)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with mitochondrial myopathy, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with mitochondrial myopathy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for mitochondrial myopathy (1 evaluation)
Side effects
Total evaluations
1
Tried for
mitochondrial myopathy (3)
Treatment name(s)

(CoQ10 Soft Gels)
Perceived effectiveness
for mitochondrial myopathy (1 evaluation)
Side effects
none
Total evaluations
1
Tried for
mitochondrial myopathy (2) fatigue (1)
Treatment name(s)

(Kre-Alkalyn creatine)
Perceived effectiveness
for mitochondrial myopathy (3 evaluations)
Side effects
nausea skin rash
Total evaluations
3
Tried for
mitochondrial myopathy (2)
Treatment name(s)

(Carnitor)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
Total evaluations
2
Tried for
fatigue (2) mitochondrial myopathy (2)
Treatment name(s)

(Vitamin C with Rose Hips)
Perceived effectiveness
for mitochondrial myopathy (2 evaluations)
Side effects
Total evaluations
2
Tried for
mitochondrial myopathy (2)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Nuvigil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1) mitochondrial myopathy (1)
Treatment name(s)

(Jarrows Formulas Creatine Monohydrate)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
mitochondrial myopathy (1)
Treatment name(s)

(Pristiq)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with mitochondrial myopathy, who reported starting treatments within the last 5 years.
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Who has mitochondrial myopathy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 7
30s 15
40s 11
50s 23
60s 11
70+ 9
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 15
20-29 years 6
30-39 years 9
40-49 years 6
50-59 years 2
60-69 years 0
70+ years 2

Sex

Distribution of sex

64% Female
36% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 39
Not Diagnosed 7

These charts show data from mitochondrial myopathy patients who have completed their condition history
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