Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.



Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
44,437
Tried for
fibromyalgia (91)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
22,536
Tried for
fibromyalgia (80)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
38,216
Tried for
fibromyalgia (53)
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
2,064
Tried for
fibromyalgia (3)

Data from patients with fibromyalgia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (55 evaluations)
Side effects
nausea constipation 49 more
Total evaluations
58
Tried for
fibromyalgia (91)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (34 evaluations)
Side effects
dizziness sleepiness 17 more
Total evaluations
34
Tried for
fibromyalgia (80)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (30 evaluations)
Side effects
dizziness dry mouth 5 more
Total evaluations
31
Tried for
fibromyalgia (53)
Treatment name(s)

(Savella)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fibromyalgia (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?

  • 82 new patients joined this month
  • 99,115 say fibromyalgia is their primary condition

Age
Age Proportion # of patients
<20 17
20s 829
30s 4,976
40s 17,983
50s 35,657
60s 34,742
70+ 13,978
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6,329
20-29 years 9,428
30-39 years 13,447
40-49 years 10,006
50-59 years 3,518
60-69 years 502
70+ years 70

Distribution of sex

Sex
Sex Proportion # of patients
Male 4,012
Female 104,716

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 49,186
Not Diagnosed 2,977

These charts show data from fibromyalgia patients who have completed their condition history
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