Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1,547
Tried for
fibromyalgia (1516) depressed mood (200)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1,015
Tried for
fibromyalgia (996) pain (147)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
901
Tried for
fibromyalgia (831) pain (271)
6 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
443
Tried for
pain (275) fibromyalgia (271)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
291
Tried for
fibromyalgia (238) pain (138)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
231
Tried for
fibromyalgia (189) pain (113)
5 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
200
Tried for
pain (162) fibromyalgia (119)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
145
Tried for
fibromyalgia (103) pain (85)
2 more
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
121
Tried for
fibromyalgia (116) pain (31)
1 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
121
Tried for
fibromyalgia (118) pain (4)
3 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (873 evaluations)
Side effects
weight gain nausea 254 more
Total evaluations
937
Tried for
fibromyalgia (1516) depressed mood (200)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (523 evaluations)
Side effects
weight gain dizziness 198 more
Total evaluations
545
Tried for
fibromyalgia (996) pain (147)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (469 evaluations)
Side effects
weight gain dizziness 166 more
Total evaluations
527
Tried for
fibromyalgia (831) pain (271)
6 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (129 evaluations)
Side effects
drowsiness nausea 64 more
Total evaluations
239
Tried for
pain (275) fibromyalgia (271)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (163 evaluations)
Side effects
dry mouth weight gain 72 more
Total evaluations
235
Tried for
fibromyalgia (238) pain (138)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (120 evaluations)
Side effects
drowsiness sleepiness 41 more
Total evaluations
161
Tried for
fibromyalgia (189) pain (113)
5 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (72 evaluations)
Side effects
constipation drowsiness 25 more
Total evaluations
91
Tried for
pain (162) fibromyalgia (119)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (52 evaluations)
Side effects
nausea stomach pain 27 more
Total evaluations
81
Tried for
fibromyalgia (103) pain (85)
2 more
Treatment name(s)

(Savella)
Perceived effectiveness
for fibromyalgia (71 evaluations)
Side effects
nausea insomnia 44 more
Total evaluations
75
Tried for
fibromyalgia (116) pain (31)
1 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (52 evaluations)
Side effects
drowsiness sleepiness 16 more
Total evaluations
55
Tried for
fibromyalgia (118) pain (4)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 92
20s 2,008
30s 9,162
40s 24,650
50s 32,706
60s 19,793
70+ 4,209
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6,249
20-29 years 9,261
30-39 years 13,219
40-49 years 9,824
50-59 years 3,440
60-69 years 490
70+ years 64

Distribution of sex

Sex
Sex Proportion # of patients
Male 3,437
Female 89,499

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 47,870
Not Diagnosed 2,967

These charts show data from fibromyalgia patients who have completed their condition history
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