Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1,631
Tried for
fibromyalgia (1610) depressed mood (206)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1,106
Tried for
fibromyalgia (1087) pain (151)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
855
Tried for
fibromyalgia (787) pain (282)
6 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
486
Tried for
fibromyalgia (311) pain (304)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
342
Tried for
fibromyalgia (288) pain (160)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
253
Tried for
fibromyalgia (217) pain (120)
3 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
218
Tried for
pain (174) fibromyalgia (137)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
148
Tried for
fibromyalgia (106) pain (93)
1 more
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
134
Tried for
fibromyalgia (129) pain (33)
1 more
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
126
Tried for
depressed mood (83) fibromyalgia (45)
3 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (914 evaluations)
Side effects
weight gain nausea 277 more
Total evaluations
975
Tried for
fibromyalgia (1610) depressed mood (206)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (561 evaluations)
Side effects
weight gain dizziness 227 more
Total evaluations
586
Tried for
fibromyalgia (1087) pain (151)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (456 evaluations)
Side effects
weight gain dizziness 176 more
Total evaluations
515
Tried for
fibromyalgia (787) pain (282)
6 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for fibromyalgia (172 evaluations)
Side effects
drowsiness nausea 69 more
Total evaluations
270
Tried for
fibromyalgia (311) pain (304)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (217 evaluations)
Side effects
dry mouth weight gain 83 more
Total evaluations
286
Tried for
fibromyalgia (288) pain (160)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (141 evaluations)
Side effects
drowsiness sleepiness 41 more
Total evaluations
177
Tried for
fibromyalgia (217) pain (120)
3 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (79 evaluations)
Side effects
constipation drowsiness 26 more
Total evaluations
100
Tried for
pain (174) fibromyalgia (137)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (50 evaluations)
Side effects
dizziness stomach pain 30 more
Total evaluations
80
Tried for
fibromyalgia (106) pain (93)
1 more
Treatment name(s)

(Savella)
Perceived effectiveness
for fibromyalgia (89 evaluations)
Side effects
nausea excessive sweating 52 more
Total evaluations
93
Tried for
fibromyalgia (129) pain (33)
1 more
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (51 evaluations)
Side effects
dry mouth anxious mood 67 more
Total evaluations
84
Tried for
depressed mood (83) fibromyalgia (45)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 92
20s 2,047
30s 9,219
40s 24,119
50s 31,017
60s 17,897
70+ 3,553
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5,984
20-29 years 8,727
30-39 years 12,381
40-49 years 9,123
50-59 years 3,214
60-69 years 444
70+ years 60

Sex

Distribution of sex

96% Female
4% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 43,786
Not Diagnosed 3,019

These charts show data from fibromyalgia patients who have completed their condition history
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