Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1,332
Tried for
fibromyalgia (1306) depressed mood (169)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
859
Tried for
fibromyalgia (840) pain (133)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
822
Tried for
fibromyalgia (758) pain (243)
6 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
378
Tried for
pain (243) fibromyalgia (218)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
251
Tried for
fibromyalgia (203) pain (117)
5 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
203
Tried for
fibromyalgia (161) pain (104)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
175
Tried for
pain (141) fibromyalgia (100)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
127
Tried for
fibromyalgia (86) pain (76)
2 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
106
Tried for
fibromyalgia (103) pain (4)
3 more
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
104
Tried for
depressed mood (70) fibromyalgia (33)
3 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (787 evaluations)
Side effects
weight gain nausea 237 more
Total evaluations
824
Tried for
fibromyalgia (1306) depressed mood (169)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (457 evaluations)
Side effects
weight gain dizziness 180 more
Total evaluations
479
Tried for
fibromyalgia (840) pain (133)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (451 evaluations)
Side effects
weight gain dizziness 169 more
Total evaluations
504
Tried for
fibromyalgia (758) pain (243)
6 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (118 evaluations)
Side effects
sleepiness drowsiness 55 more
Total evaluations
211
Tried for
pain (243) fibromyalgia (218)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (149 evaluations)
Side effects
dry mouth weight gain 67 more
Total evaluations
220
Tried for
fibromyalgia (203) pain (117)
5 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (102 evaluations)
Side effects
drowsiness sleepiness 36 more
Total evaluations
139
Tried for
fibromyalgia (161) pain (104)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (64 evaluations)
Side effects
constipation drowsiness 23 more
Total evaluations
82
Tried for
pain (141) fibromyalgia (100)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (46 evaluations)
Side effects
nausea anxious mood 24 more
Total evaluations
75
Tried for
fibromyalgia (86) pain (76)
2 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (46 evaluations)
Side effects
drowsiness sleepiness 18 more
Total evaluations
49
Tried for
fibromyalgia (103) pain (4)
3 more
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (41 evaluations)
Side effects
anxious mood dizziness 60 more
Total evaluations
71
Tried for
depressed mood (70) fibromyalgia (33)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 77
20s 1,993
30s 9,165
40s 25,288
50s 34,414
60s 21,470
70+ 4,829
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6,268
20-29 years 9,321
30-39 years 13,309
40-49 years 9,889
50-59 years 3,462
60-69 years 493
70+ years 64

Distribution of sex

Sex
Sex Proportion # of patients
Male 3,597
Female 94,104

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48,319
Not Diagnosed 2,976

These charts show data from fibromyalgia patients who have completed their condition history
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