Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1252
Tried for
fibromyalgia (1226) depressed mood (160)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
786
Tried for
fibromyalgia (766) pain (117)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
785
Tried for
fibromyalgia (728) pain (223)
6 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
353
Tried for
pain (224) fibromyalgia (202)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
228
Tried for
fibromyalgia (183) pain (107)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
196
Tried for
fibromyalgia (154) pain (102)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
157
Tried for
pain (126) fibromyalgia (91)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
117
Tried for
fibromyalgia (77) pain (67)
2 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
103
Tried for
fibromyalgia (99) muscle pain (4)
3 more
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
97
Tried for
depressed mood (66) fibromyalgia (31)
3 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (721 evaluations)
Side effects
weight gain nausea 222 more
Total evaluations
759
Tried for
fibromyalgia (1226) depressed mood (160)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (432 evaluations)
Side effects
weight gain brain fog 165 more
Total evaluations
454
Tried for
fibromyalgia (766) pain (117)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (431 evaluations)
Side effects
weight gain dizziness 155 more
Total evaluations
481
Tried for
fibromyalgia (728) pain (223)
6 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (108 evaluations)
Side effects
drowsiness sleepiness 50 more
Total evaluations
203
Tried for
pain (224) fibromyalgia (202)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (140 evaluations)
Side effects
dry mouth weight gain 62 more
Total evaluations
199
Tried for
fibromyalgia (183) pain (107)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (93 evaluations)
Side effects
drowsiness sleepiness 36 more
Total evaluations
131
Tried for
fibromyalgia (154) pain (102)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (65 evaluations)
Side effects
constipation drowsiness 24 more
Total evaluations
80
Tried for
pain (126) fibromyalgia (91)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (39 evaluations)
Side effects
nausea stomach pain 19 more
Total evaluations
66
Tried for
fibromyalgia (77) pain (67)
2 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (45 evaluations)
Side effects
drowsiness sleepiness 19 more
Total evaluations
49
Tried for
fibromyalgia (99) muscle pain (4)
3 more
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (36 evaluations)
Side effects
anxious mood dizziness 57 more
Total evaluations
62
Tried for
depressed mood (66) fibromyalgia (31)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 69
20s 1892
30s 8855
40s 24775
50s 34782
60s 22536
70+ 5297
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6317
20-29 years 9399
30-39 years 13415
40-49 years 9964
50-59 years 3484
60-69 years 496
70+ years 66

Distribution of sex

Sex
Sex Proportion # of patients
Male 3647
Female 95037

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48920
Not Diagnosed 2986

These charts show data from fibromyalgia patients who have completed their condition history
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