Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1289
Tried for
fibromyalgia (1263) depressed mood (168)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
803
Tried for
fibromyalgia (782) pain (122)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
801
Tried for
fibromyalgia (744) pain (229)
6 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
363
Tried for
pain (231) fibromyalgia (209)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
233
Tried for
fibromyalgia (189) pain (110)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
197
Tried for
fibromyalgia (157) pain (101)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
168
Tried for
pain (134) fibromyalgia (96)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
118
Tried for
fibromyalgia (78) pain (68)
2 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
101
Tried for
fibromyalgia (98) pain (4)
3 more
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
98
Tried for
depressed mood (67) fibromyalgia (31)
3 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (754 evaluations)
Side effects
weight gain nausea 229 more
Total evaluations
792
Tried for
fibromyalgia (1263) depressed mood (168)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (435 evaluations)
Side effects
weight gain brain fog 164 more
Total evaluations
458
Tried for
fibromyalgia (782) pain (122)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (441 evaluations)
Side effects
weight gain dizziness 159 more
Total evaluations
491
Tried for
fibromyalgia (744) pain (229)
6 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (117 evaluations)
Side effects
sleepiness drowsiness 52 more
Total evaluations
213
Tried for
pain (231) fibromyalgia (209)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (141 evaluations)
Side effects
dry mouth weight gain 64 more
Total evaluations
201
Tried for
fibromyalgia (189) pain (110)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (96 evaluations)
Side effects
drowsiness sleepiness 36 more
Total evaluations
132
Tried for
fibromyalgia (157) pain (101)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (64 evaluations)
Side effects
constipation drowsiness 24 more
Total evaluations
81
Tried for
pain (134) fibromyalgia (96)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (40 evaluations)
Side effects
nausea stomach pain 21 more
Total evaluations
67
Tried for
fibromyalgia (78) pain (68)
2 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (45 evaluations)
Side effects
drowsiness sleepiness 18 more
Total evaluations
48
Tried for
fibromyalgia (98) pain (4)
3 more
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (37 evaluations)
Side effects
anxious mood dizziness 57 more
Total evaluations
63
Tried for
depressed mood (67) fibromyalgia (31)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 72
20s 1936
30s 8999
40s 25076
50s 34661
60s 22116
70+ 5112
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6310
20-29 years 9387
30-39 years 13409
40-49 years 9958
50-59 years 3483
60-69 years 496
70+ years 66

Distribution of sex

Sex
Sex Proportion # of patients
Male 3626
Female 94805

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48848
Not Diagnosed 2984

These charts show data from fibromyalgia patients who have completed their condition history
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