Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1318
Tried for
fibromyalgia (1293) depressed mood (170)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
834
Tried for
fibromyalgia (813) pain (130)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
821
Tried for
fibromyalgia (758) pain (242)
6 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
377
Tried for
pain (242) fibromyalgia (218)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
251
Tried for
fibromyalgia (202) pain (117)
5 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
201
Tried for
fibromyalgia (161) pain (103)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
174
Tried for
pain (141) fibromyalgia (99)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
124
Tried for
fibromyalgia (83) pain (74)
2 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
106
Tried for
fibromyalgia (103) pain (4)
3 more
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
100
Tried for
anxious mood (97) fibromyalgia (3)
4 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (768 evaluations)
Side effects
weight gain nausea 235 more
Total evaluations
806
Tried for
fibromyalgia (1293) depressed mood (170)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (444 evaluations)
Side effects
weight gain brain fog 172 more
Total evaluations
466
Tried for
fibromyalgia (813) pain (130)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (454 evaluations)
Side effects
weight gain dizziness 169 more
Total evaluations
507
Tried for
fibromyalgia (758) pain (242)
6 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (119 evaluations)
Side effects
sleepiness drowsiness 54 more
Total evaluations
214
Tried for
pain (242) fibromyalgia (218)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (150 evaluations)
Side effects
dry mouth weight gain 68 more
Total evaluations
220
Tried for
fibromyalgia (202) pain (117)
5 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (99 evaluations)
Side effects
drowsiness sleepiness 36 more
Total evaluations
135
Tried for
fibromyalgia (161) pain (103)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (65 evaluations)
Side effects
constipation drowsiness 23 more
Total evaluations
83
Tried for
pain (141) fibromyalgia (99)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (44 evaluations)
Side effects
nausea stomach pain 24 more
Total evaluations
72
Tried for
fibromyalgia (83) pain (74)
2 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (46 evaluations)
Side effects
drowsiness sleepiness 19 more
Total evaluations
49
Tried for
fibromyalgia (103) pain (4)
3 more
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (48 evaluations)
Side effects
sleepiness tiredness 13 more
Total evaluations
57
Tried for
anxious mood (97) fibromyalgia (3)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 73
20s 1975
30s 9085
40s 25227
50s 34534
60s 21762
70+ 4985
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6289
20-29 years 9356
30-39 years 13370
40-49 years 9934
50-59 years 3471
60-69 years 496
70+ years 66

Distribution of sex

Sex
Sex Proportion # of patients
Male 3611
Female 94499

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48647
Not Diagnosed 2980

These charts show data from fibromyalgia patients who have completed their condition history
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