Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1,344
Tried for
fibromyalgia (1318) depressed mood (171)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
867
Tried for
fibromyalgia (850) pain (134)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
814
Tried for
fibromyalgia (751) pain (249)
6 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
387
Tried for
pain (244) fibromyalgia (229)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
257
Tried for
fibromyalgia (210) pain (122)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
206
Tried for
fibromyalgia (166) pain (103)
5 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
170
Tried for
pain (136) fibromyalgia (99)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
127
Tried for
fibromyalgia (88) pain (76)
2 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
106
Tried for
fibromyalgia (103) pain (4)
3 more
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
106
Tried for
depressed mood (71) fibromyalgia (35)
3 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (788 evaluations)
Side effects
weight gain nausea 235 more
Total evaluations
828
Tried for
fibromyalgia (1318) depressed mood (171)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (462 evaluations)
Side effects
weight gain dizziness 180 more
Total evaluations
482
Tried for
fibromyalgia (850) pain (134)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (444 evaluations)
Side effects
weight gain dizziness 163 more
Total evaluations
496
Tried for
fibromyalgia (751) pain (249)
6 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (119 evaluations)
Side effects
sleepiness drowsiness 59 more
Total evaluations
222
Tried for
pain (244) fibromyalgia (229)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (148 evaluations)
Side effects
dry mouth weight gain 69 more
Total evaluations
217
Tried for
fibromyalgia (210) pain (122)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (106 evaluations)
Side effects
drowsiness sleepiness 36 more
Total evaluations
143
Tried for
fibromyalgia (166) pain (103)
5 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (62 evaluations)
Side effects
constipation drowsiness 22 more
Total evaluations
79
Tried for
pain (136) fibromyalgia (99)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (48 evaluations)
Side effects
nausea anxious mood 25 more
Total evaluations
76
Tried for
fibromyalgia (88) pain (76)
2 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (46 evaluations)
Side effects
drowsiness sleepiness 16 more
Total evaluations
49
Tried for
fibromyalgia (103) pain (4)
3 more
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (41 evaluations)
Side effects
anxious mood dizziness 61 more
Total evaluations
71
Tried for
depressed mood (71) fibromyalgia (35)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 87
20s 1,988
30s 9,069
40s 24,492
50s 32,680
60s 19,981
70+ 4,369
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6,249
20-29 years 9,268
30-39 years 13,223
40-49 years 9,817
50-59 years 3,440
60-69 years 489
70+ years 64

Distribution of sex

Sex
Sex Proportion # of patients
Male 3,442
Female 89,542

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 47,890
Not Diagnosed 2,967

These charts show data from fibromyalgia patients who have completed their condition history
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