Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1,653
Tried for
fibromyalgia (1628) depressed mood (209)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1,103
Tried for
fibromyalgia (1084) Pain (151)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
898
Tried for
fibromyalgia (829) Pain (283)
6 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
476
Tried for
fibromyalgia (302) Pain (295)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
336
Tried for
fibromyalgia (281) Pain (159)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
248
Tried for
fibromyalgia (211) Pain (117)
3 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
221
Tried for
Pain (178) fibromyalgia (138)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
155
Tried for
fibromyalgia (110) Pain (95)
1 more
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
134
Tried for
fibromyalgia (129) Pain (32)
1 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
127
Tried for
fibromyalgia (124) Pain (4)
2 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (917 evaluations)
Side effects
weight gain nausea 275 more
Total evaluations
979
Tried for
fibromyalgia (1628) depressed mood (209)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (561 evaluations)
Side effects
weight gain dizziness 232 more
Total evaluations
585
Tried for
fibromyalgia (1084) Pain (151)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (477 evaluations)
Side effects
weight gain dizziness 186 more
Total evaluations
539
Tried for
fibromyalgia (829) Pain (283)
6 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for fibromyalgia (166 evaluations)
Side effects
drowsiness nausea 69 more
Total evaluations
264
Tried for
fibromyalgia (302) Pain (295)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (214 evaluations)
Side effects
dry mouth weight gain 85 more
Total evaluations
283
Tried for
fibromyalgia (281) Pain (159)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (140 evaluations)
Side effects
drowsiness sleepiness 42 more
Total evaluations
179
Tried for
fibromyalgia (211) Pain (117)
3 more
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (81 evaluations)
Side effects
constipation drowsiness 26 more
Total evaluations
101
Tried for
Pain (178) fibromyalgia (138)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (54 evaluations)
Side effects
nausea stomach pain 29 more
Total evaluations
84
Tried for
fibromyalgia (110) Pain (95)
1 more
Treatment name(s)

(Savella)
Perceived effectiveness
for fibromyalgia (90 evaluations)
Side effects
nausea excessive sweating 54 more
Total evaluations
94
Tried for
fibromyalgia (129) Pain (32)
1 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (56 evaluations)
Side effects
drowsiness sleepiness 18 more
Total evaluations
60
Tried for
fibromyalgia (124) Pain (4)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 97
20s 2,097
30s 9,453
40s 24,788
50s 32,010
60s 18,611
70+ 3,728
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6,151
20-29 years 9,068
30-39 years 12,950
40-49 years 9,585
50-59 years 3,390
60-69 years 480
70+ years 64

Sex

Distribution of sex

96% Female
4% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 45,346
Not Diagnosed 3,066

These charts show data from fibromyalgia patients who have completed their condition history
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