Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
950
Tried for
fibromyalgia (929) depressed mood (119)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
587
Tried for
fibromyalgia (549) pain (153)
4 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
548
Tried for
fibromyalgia (536) pain (76)
4 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
238
Tried for
pain (146) fibromyalgia (142)
3 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
149
Tried for
fibromyalgia (114) pain (75)
4 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
144
Tried for
fibromyalgia (115) pain (56)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
108
Tried for
pain (89) fibromyalgia (55)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
85
Tried for
fibromyalgia (56) pain (44)
2 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
74
Tried for
fibromyalgia (71) fatigue (16)
3 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
72
Tried for
fibromyalgia (70) muscle pain (3)
2 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (569 evaluations)
Side effects
weight gain nausea 200 more
Total evaluations
605
Tried for
fibromyalgia (929) depressed mood (119)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (327 evaluations)
Side effects
weight gain drowsiness 130 more
Total evaluations
360
Tried for
fibromyalgia (549) pain (153)
4 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (327 evaluations)
Side effects
weight gain dizziness 134 more
Total evaluations
339
Tried for
fibromyalgia (536) pain (76)
4 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (76 evaluations)
Side effects
nausea sleepiness 30 more
Total evaluations
152
Tried for
pain (146) fibromyalgia (142)
3 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (64 evaluations)
Side effects
drowsiness sleepiness 27 more
Total evaluations
92
Tried for
fibromyalgia (114) pain (75)
4 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (77 evaluations)
Side effects
dry mouth weight gain 41 more
Total evaluations
107
Tried for
fibromyalgia (115) pain (56)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (48 evaluations)
Side effects
constipation drowsiness 16 more
Total evaluations
58
Tried for
pain (89) fibromyalgia (55)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (28 evaluations)
Side effects
nausea stomach pain 23 more
Total evaluations
53
Tried for
fibromyalgia (56) pain (44)
2 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for fibromyalgia (74 evaluations)
Side effects
vivid dreams headaches 27 more
Total evaluations
76
Tried for
fibromyalgia (71) fatigue (16)
3 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (36 evaluations)
Side effects
drowsiness sleepiness 14 more
Total evaluations
39
Tried for
fibromyalgia (70) muscle pain (3)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 63
20s 1680
30s 8253
40s 24616
50s 36912
60s 25740
70+ 6571
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6318
20-29 years 9401
30-39 years 13439
40-49 years 9984
50-59 years 3491
60-69 years 496
70+ years 67

Distribution of sex

Sex
Sex Proportion # of patients
Male 3840
Female 100574

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 49039
Not Diagnosed 2986

These charts show data from fibromyalgia patients who have completed their condition history
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