Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1211
Tried for
fibromyalgia (1184) depressed mood (156)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
750
Tried for
fibromyalgia (695) pain (211)
6 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
748
Tried for
fibromyalgia (729) pain (112)
5 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
337
Tried for
pain (217) fibromyalgia (190)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
219
Tried for
fibromyalgia (175) pain (102)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
189
Tried for
fibromyalgia (147) pain (98)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
151
Tried for
pain (121) fibromyalgia (87)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
111
Tried for
fibromyalgia (74) pain (64)
2 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
100
Tried for
fibromyalgia (96) muscle pain (4)
3 more
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
96
Tried for
depressed mood (65) fibromyalgia (32)
3 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (701 evaluations)
Side effects
weight gain nausea 213 more
Total evaluations
741
Tried for
fibromyalgia (1184) depressed mood (156)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (407 evaluations)
Side effects
weight gain drowsiness 153 more
Total evaluations
454
Tried for
fibromyalgia (695) pain (211)
6 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (412 evaluations)
Side effects
weight gain brain fog 160 more
Total evaluations
433
Tried for
fibromyalgia (729) pain (112)
5 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (108 evaluations)
Side effects
drowsiness nausea 49 more
Total evaluations
196
Tried for
pain (217) fibromyalgia (190)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (141 evaluations)
Side effects
dry mouth weight gain 61 more
Total evaluations
197
Tried for
fibromyalgia (175) pain (102)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (84 evaluations)
Side effects
drowsiness sleepiness 34 more
Total evaluations
122
Tried for
fibromyalgia (147) pain (98)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (64 evaluations)
Side effects
constipation drowsiness 23 more
Total evaluations
78
Tried for
pain (121) fibromyalgia (87)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (38 evaluations)
Side effects
nausea stomach pain 19 more
Total evaluations
65
Tried for
fibromyalgia (74) pain (64)
2 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (45 evaluations)
Side effects
drowsiness sleepiness 19 more
Total evaluations
50
Tried for
fibromyalgia (96) muscle pain (4)
3 more
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (36 evaluations)
Side effects
anxious mood dizziness 57 more
Total evaluations
62
Tried for
depressed mood (65) fibromyalgia (32)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 69
20s 1814
30s 8619
40s 24520
50s 34814
60s 23092
70+ 5552
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6322
20-29 years 9400
30-39 years 13422
40-49 years 9971
50-59 years 3485
60-69 years 496
70+ years 66

Distribution of sex

Sex
Sex Proportion # of patients
Male 3677
Female 95290

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48941
Not Diagnosed 2987

These charts show data from fibromyalgia patients who have completed their condition history
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