Fibromyalgia

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with Fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Fibromyalgia

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2,027
Tried for
Fibromyalgia (2007) Depressed mood (286)
9 more
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Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1,734
Tried for
Fibromyalgia (1703) Pain (215)
9 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1,023
Tried for
Fibromyalgia (921) Pain (347)
10 more
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
769
Tried for
Fibromyalgia (520) Pain (489)
6 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
631
Tried for
Fibromyalgia (464) Insomnia (311)
7 more
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Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
509
Tried for
Fibromyalgia (491) Pain (108)
6 more
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
492
Tried for
Fibromyalgia (325) Muscle spasms (278)
6 more
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Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
467
Tried for
Pain (337) Fibromyalgia (263)
6 more
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Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
231
Tried for
Fibromyalgia (151) Muscle spasms (143)
7 more
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Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
197
Tried for
Fibromyalgia (134) Pain (128)
3 more

Data from patients with Fibromyalgia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Fibromyalgia

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Fibromyalgia (839 evaluations)
Side effects
Nausea Weight gain 321 more
How many evaluations
875
Tried for
Fibromyalgia (2008) Depressed mood (287)
9 more
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Fibromyalgia (655 evaluations)
Side effects
Weight gain Dizziness 320 more
How many evaluations
717
Tried for
Fibromyalgia (1703) Pain (215)
9 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Fibromyalgia (394 evaluations)
Side effects
Weight gain Drowsiness 170 more
How many evaluations
452
Tried for
Fibromyalgia (921) Pain (347)
10 more
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Fibromyalgia (201 evaluations)
Side effects
Constipation Nausea 92 more
How many evaluations
312
Tried for
Fibromyalgia (519) Pain (489)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Fibromyalgia (249 evaluations)
Side effects
Dry mouth Weight gain 114 more
How many evaluations
356
Tried for
Fibromyalgia (464) Insomnia (311)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Savella)
Perceived effectiveness
for Fibromyalgia (260 evaluations)
Side effects
Nausea Headaches 127 more
How many evaluations
265
Tried for
Fibromyalgia (490) Pain (108)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Fibromyalgia (160 evaluations)
Side effects
Drowsiness Sleepiness 44 more
How many evaluations
229
Tried for
Fibromyalgia (325) Muscle spasms (278)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (125 evaluations)
Side effects
Constipation Drowsiness 62 more
How many evaluations
182
Tried for
Pain (337) Fibromyalgia (263)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for Fibromyalgia (45 evaluations)
Side effects
Sleepiness Drowsiness 19 more
How many evaluations
77
Tried for
Fibromyalgia (151) Muscle spasms (143)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Mobic)
Perceived effectiveness
for Fibromyalgia (52 evaluations)
Side effects
Anxious mood Dizziness 24 more
How many evaluations
77
Tried for
Fibromyalgia (134) Pain (128)
3 more

Data from patients with Fibromyalgia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 112
20s 2,075
30s 7,538
40s 16,431
50s 18,454
60s 8,416
70+ 1,269

Sex

Distribution of sex

96% Female
4% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5,149
20-29 years 7,252
30-39 years 9,924
40-49 years 7,060
50-59 years 2,348
60-69 years 300
70+ years 40

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 35,511
Not Diagnosed 2,731

These charts show data from Fibromyalgia patients who have completed their condition history
Last updated: