Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with Fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Fibromyalgia

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2,219
Tried for
Fibromyalgia (2190) Depressed mood (321)
9 more
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Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1,930
Tried for
Fibromyalgia (1891) Pain (239)
9 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1,086
Tried for
Fibromyalgia (974) Pain (366)
10 more
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
841
Tried for
Fibromyalgia (563) Pain (548)
7 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
666
Tried for
Fibromyalgia (484) Insomnia (332)
7 more
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Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
570
Tried for
Fibromyalgia (551) Pain (110)
6 more
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
541
Tried for
Fibromyalgia (359) Muscle spasms (306)
6 more
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Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
521
Tried for
Pain (372) Fibromyalgia (290)
6 more
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Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
243
Tried for
Fibromyalgia (160) Muscle spasms (152)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
213
Tried for
Fibromyalgia (147) Pain (132)
3 more

Data from patients with Fibromyalgia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Fibromyalgia

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Fibromyalgia (907 evaluations)
Side effects
Nausea Weight gain 345 more
How many evaluations
949
Tried for
Fibromyalgia (2190) Depressed mood (321)
9 more
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Fibromyalgia (698 evaluations)
Side effects
Weight gain Dizziness 335 more
How many evaluations
762
Tried for
Fibromyalgia (1891) Pain (239)
9 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Fibromyalgia (412 evaluations)
Side effects
Weight gain Dizziness 170 more
How many evaluations
475
Tried for
Fibromyalgia (974) Pain (366)
10 more
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Fibromyalgia (220 evaluations)
Side effects
Constipation Dizziness 101 more
How many evaluations
346
Tried for
Fibromyalgia (563) Pain (548)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Fibromyalgia (247 evaluations)
Side effects
Dry mouth Weight gain 110 more
How many evaluations
354
Tried for
Fibromyalgia (484) Insomnia (332)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Savella)
Perceived effectiveness
for Fibromyalgia (295 evaluations)
Side effects
Nausea Headaches 135 more
How many evaluations
300
Tried for
Fibromyalgia (551) Pain (110)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Fibromyalgia (165 evaluations)
Side effects
Drowsiness Sleepiness 48 more
How many evaluations
235
Tried for
Fibromyalgia (359) Muscle spasms (306)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (140 evaluations)
Side effects
Constipation Drowsiness 62 more
How many evaluations
204
Tried for
Pain (372) Fibromyalgia (290)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for Fibromyalgia (42 evaluations)
Side effects
Sleepiness Drowsiness 20 more
How many evaluations
75
Tried for
Fibromyalgia (160) Muscle spasms (152)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Mobic)
Perceived effectiveness
for Fibromyalgia (62 evaluations)
Side effects
Anxious mood Dizziness 24 more
How many evaluations
92
Tried for
Fibromyalgia (147) Pain (132)
3 more

Data from patients with Fibromyalgia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 135
20s 2,172
30s 7,907
40s 16,614
50s 18,133
60s 7,781
70+ 1,136

Gender

Distribution of females vs. males

96% Females
4% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5,103
20-29 years 7,197
30-39 years 9,840
40-49 years 7,000
50-59 years 2,323
60-69 years 300
70+ years 41

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 35,202
Not Diagnosed 2,724

These charts show data from Fibromyalgia patients who have completed their condition history
Last updated: