Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1,627
Tried for
fibromyalgia (1609) Depressed mood (202)
9 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1,127
Tried for
fibromyalgia (1108) Pain (155)
7 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
836
Tried for
fibromyalgia (763) Pain (284)
10 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
486
Tried for
fibromyalgia (327) Pain (317)
5 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
408
Tried for
fibromyalgia (294) Insomnia (190)
6 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
331
Tried for
fibromyalgia (222) Muscle spasms (203)
7 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
247
Tried for
Pain (185) fibromyalgia (138)
4 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
189
Tried for
Muscle spasms (132) fibromyalgia (116)
4 more
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
162
Tried for
Muscle spasms (150) fibromyalgia (16)
4 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
152
Tried for
fibromyalgia (108) Pain (95)
2 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (937 evaluations)
Side effects
Weight gain Nausea 286 more
Total evaluations
980
Tried for
fibromyalgia (1609) Depressed mood (202)
9 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (574 evaluations)
Side effects
Weight gain Dizziness 246 more
Total evaluations
600
Tried for
fibromyalgia (1108) Pain (155)
7 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (454 evaluations)
Side effects
Weight gain Dizziness 178 more
Total evaluations
510
Tried for
fibromyalgia (763) Pain (284)
10 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for fibromyalgia (160 evaluations)
Side effects
Drowsiness Nausea 65 more
Total evaluations
244
Tried for
fibromyalgia (327) Pain (317)
5 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (219 evaluations)
Side effects
Dry mouth Sleepiness 99 more
Total evaluations
337
Tried for
fibromyalgia (294) Insomnia (190)
6 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (138 evaluations)
Side effects
Drowsiness Sleepiness 53 more
Total evaluations
216
Tried for
fibromyalgia (222) Muscle spasms (203)
7 more
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (83 evaluations)
Side effects
Constipation Drowsiness 33 more
Total evaluations
114
Tried for
Pain (185) fibromyalgia (138)
4 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for Muscle spasms (53 evaluations)
Side effects
Drowsiness Sleepiness 21 more
Total evaluations
81
Tried for
Muscle spasms (132) fibromyalgia (116)
4 more
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Muscle spasms (72 evaluations)
Side effects
Drowsiness Fatigue 25 more
Total evaluations
87
Tried for
Muscle spasms (150) fibromyalgia (16)
4 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (50 evaluations)
Side effects
Dizziness Abdominal pain 27 more
Total evaluations
76
Tried for
fibromyalgia (108) Pain (95)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 87
20s 2,051
30s 8,894
40s 22,896
50s 29,250
60s 16,442
70+ 3,090
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5,878
20-29 years 8,440
30-39 years 11,932
40-49 years 8,717
50-59 years 3,027
60-69 years 413
70+ years 54

Sex

Distribution of sex

96% Female
4% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 42,154
Not Diagnosed 2,964

These charts show data from fibromyalgia patients who have completed their condition history
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