Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
907
Tried for
fibromyalgia (885) depressed mood (113)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
566
Tried for
fibromyalgia (531) pain (144)
4 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
508
Tried for
fibromyalgia (496) pain (73)
4 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
218
Tried for
fibromyalgia (131) pain (129)
3 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
145
Tried for
fibromyalgia (109) pain (73)
4 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
129
Tried for
fibromyalgia (104) pain (45)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
100
Tried for
pain (83) fibromyalgia (50)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
85
Tried for
fibromyalgia (55) pain (45)
2 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
70
Tried for
fibromyalgia (68) muscle pain (3)
2 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
68
Tried for
fibromyalgia (65) fatigue (15)
2 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (541 evaluations)
Side effects
weight gain nausea 195 more
Total evaluations
580
Tried for
fibromyalgia (885) depressed mood (113)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (314 evaluations)
Side effects
dizziness weight gain 132 more
Total evaluations
346
Tried for
fibromyalgia (531) pain (144)
4 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (293 evaluations)
Side effects
weight gain dizziness 119 more
Total evaluations
306
Tried for
fibromyalgia (496) pain (73)
4 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for fibromyalgia (75 evaluations)
Side effects
nausea itching 28 more
Total evaluations
148
Tried for
fibromyalgia (131) pain (129)
3 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (64 evaluations)
Side effects
drowsiness sleepiness 26 more
Total evaluations
93
Tried for
fibromyalgia (109) pain (73)
4 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (69 evaluations)
Side effects
dry mouth weight gain 38 more
Total evaluations
92
Tried for
fibromyalgia (104) pain (45)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (44 evaluations)
Side effects
constipation drowsiness 14 more
Total evaluations
54
Tried for
pain (83) fibromyalgia (50)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (28 evaluations)
Side effects
nausea stomach pain 24 more
Total evaluations
54
Tried for
fibromyalgia (55) pain (45)
2 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (34 evaluations)
Side effects
drowsiness excessive daytime sleepiness (somnolence) 13 more
Total evaluations
37
Tried for
fibromyalgia (68) muscle pain (3)
2 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for fibromyalgia (66 evaluations)
Side effects
vivid dreams insomnia 26 more
Total evaluations
68
Tried for
fibromyalgia (65) fatigue (15)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 58
20s 1575
30s 8001
40s 24555
50s 38136
60s 27476
70+ 7255
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6327
20-29 years 9418
30-39 years 13450
40-49 years 10004
50-59 years 3503
60-69 years 499
70+ years 68

Distribution of sex

Sex
Sex Proportion # of patients
Male 3905
Female 103773

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 49127
Not Diagnosed 2988

These charts show data from fibromyalgia patients who have completed their condition history
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