Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
44424
Tried for
fibromyalgia (585)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
22484
Tried for
fibromyalgia (405)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
38231
Tried for
fibromyalgia (356)
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
2057
Tried for
fibromyalgia (41)

Data from patients with fibromyalgia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (359 evaluations)
Side effects
weight gain nausea 148 more
Total evaluations
373
Tried for
fibromyalgia (585)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (233 evaluations)
Side effects
dizziness weight gain 96 more
Total evaluations
247
Tried for
fibromyalgia (405)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (222 evaluations)
Side effects
weight gain dizziness 97 more
Total evaluations
226
Tried for
fibromyalgia (356)
Treatment name(s)

(Savella)
Perceived effectiveness
for fibromyalgia (29 evaluations)
Side effects
drowsiness excessive sweating 14 more
Total evaluations
29
Tried for
fibromyalgia (41)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has fibromyalgia on PatientsLikeMe?

  • 41 new patients joined this month
  • 98665 say fibromyalgia is their primary condition

Age
Age Proportion # of patients
<20 38
20s 1421
30s 7285
40s 23203
50s 37941
60s 29036
70+ 8279
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6329
20-29 years 9423
30-39 years 13455
40-49 years 10000
50-59 years 3507
60-69 years 497
70+ years 68

Distribution of sex

Sex
Sex Proportion # of patients
Male 3920
Female 103905

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 49141
Not Diagnosed 2989

These charts show data from fibromyalgia patients who have completed their condition history
Last updated: