Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1,633
Tried for
fibromyalgia (1614) Depressed mood (203)
6 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1,106
Tried for
fibromyalgia (1087) Pain (153)
6 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
842
Tried for
fibromyalgia (773) Pain (281)
7 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
491
Tried for
fibromyalgia (314) Pain (308)
4 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
395
Tried for
fibromyalgia (288) Insomnia (183)
5 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
259
Tried for
fibromyalgia (217) Pain (119)
5 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
219
Tried for
Pain (176) fibromyalgia (138)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
147
Tried for
fibromyalgia (105) Pain (92)
1 more
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
136
Tried for
fibromyalgia (131) Pain (32)
1 more
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
127
Tried for
Depressed mood (82) fibromyalgia (46)
4 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (928 evaluations)
Side effects
Weight gain Nausea 277 more
Total evaluations
990
Tried for
fibromyalgia (1614) Depressed mood (203)
6 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (562 evaluations)
Side effects
Weight gain Dizziness 232 more
Total evaluations
586
Tried for
fibromyalgia (1087) Pain (153)
6 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (455 evaluations)
Side effects
Weight gain Dizziness 170 more
Total evaluations
507
Tried for
fibromyalgia (773) Pain (281)
7 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for fibromyalgia (166 evaluations)
Side effects
Drowsiness Nausea 69 more
Total evaluations
268
Tried for
fibromyalgia (314) Pain (308)
4 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (216 evaluations)
Side effects
Dry mouth Weight gain 94 more
Total evaluations
324
Tried for
fibromyalgia (288) Insomnia (183)
5 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (139 evaluations)
Side effects
Drowsiness Sleepiness 41 more
Total evaluations
177
Tried for
fibromyalgia (217) Pain (119)
5 more
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (80 evaluations)
Side effects
Constipation Drowsiness 26 more
Total evaluations
100
Tried for
Pain (176) fibromyalgia (138)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (50 evaluations)
Side effects
Dizziness Stomach pain 30 more
Total evaluations
80
Tried for
fibromyalgia (105) Pain (92)
1 more
Treatment name(s)

(Savella)
Perceived effectiveness
for fibromyalgia (89 evaluations)
Side effects
Nausea Excessive sweating 52 more
Total evaluations
93
Tried for
fibromyalgia (131) Pain (32)
1 more
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for Depressed mood (49 evaluations)
Side effects
Dry mouth Anxious mood 66 more
Total evaluations
82
Tried for
Depressed mood (82) fibromyalgia (46)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 89
20s 2,033
30s 9,077
40s 23,742
50s 30,379
60s 17,424
70+ 3,419
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5,912
20-29 years 8,541
30-39 years 12,080
40-49 years 8,859
50-59 years 3,091
60-69 years 428
70+ years 55

Sex

Distribution of sex

96% Female
4% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 42,884
Not Diagnosed 2,987

These charts show data from fibromyalgia patients who have completed their condition history
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