Fibromyalgia

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with Fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Fibromyalgia

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2,042
Tried for
Fibromyalgia (2020) Depressed mood (291)
9 more
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Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1,753
Tried for
Fibromyalgia (1721) Pain (217)
9 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1,023
Tried for
Fibromyalgia (920) Pain (347)
10 more
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
774
Tried for
Fibromyalgia (519) Pain (494)
6 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
631
Tried for
Fibromyalgia (465) Insomnia (312)
7 more
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Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
526
Tried for
Fibromyalgia (507) Pain (107)
6 more
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
497
Tried for
Fibromyalgia (332) Muscle spasms (282)
6 more
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Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
469
Tried for
Pain (338) Fibromyalgia (262)
6 more
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Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
234
Tried for
Fibromyalgia (154) Muscle spasms (146)
8 more
Check to add this treatment to your profile
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
202
Tried for
Fibromyalgia (138) Pain (129)
3 more

Data from patients with Fibromyalgia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Fibromyalgia

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Fibromyalgia (840 evaluations)
Side effects
Nausea Weight gain 320 more
How many evaluations
877
Tried for
Fibromyalgia (2020) Depressed mood (291)
9 more
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Fibromyalgia (650 evaluations)
Side effects
Weight gain Dizziness 318 more
How many evaluations
712
Tried for
Fibromyalgia (1721) Pain (217)
9 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Fibromyalgia (400 evaluations)
Side effects
Weight gain Drowsiness 167 more
How many evaluations
459
Tried for
Fibromyalgia (920) Pain (347)
10 more
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Fibromyalgia (199 evaluations)
Side effects
Constipation Dizziness 92 more
How many evaluations
311
Tried for
Fibromyalgia (519) Pain (494)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Fibromyalgia (247 evaluations)
Side effects
Dry mouth Weight gain 112 more
How many evaluations
350
Tried for
Fibromyalgia (465) Insomnia (312)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Savella)
Perceived effectiveness
for Fibromyalgia (272 evaluations)
Side effects
Nausea Headaches 128 more
How many evaluations
277
Tried for
Fibromyalgia (507) Pain (107)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Fibromyalgia (165 evaluations)
Side effects
Drowsiness Sleepiness 44 more
How many evaluations
232
Tried for
Fibromyalgia (332) Muscle spasms (282)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (131 evaluations)
Side effects
Constipation Drowsiness 61 more
How many evaluations
187
Tried for
Pain (338) Fibromyalgia (262)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for Fibromyalgia (44 evaluations)
Side effects
Sleepiness Drowsiness 20 more
How many evaluations
77
Tried for
Fibromyalgia (154) Muscle spasms (146)
8 more
Check to add this treatment to your profile
Treatment name(s)

(Mobic)
Perceived effectiveness
for Fibromyalgia (56 evaluations)
Side effects
Anxious mood Dizziness 24 more
How many evaluations
83
Tried for
Fibromyalgia (138) Pain (129)
3 more

Data from patients with Fibromyalgia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 113
20s 2,072
30s 7,535
40s 16,403
50s 18,368
60s 8,347
70+ 1,258

Sex

Distribution of sex

96% Female
4% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5,128
20-29 years 7,219
30-39 years 9,877
40-49 years 7,037
50-59 years 2,333
60-69 years 298
70+ years 41

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 35,356
Not Diagnosed 2,730

These charts show data from Fibromyalgia patients who have completed their condition history
Last updated: