Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1026
Tried for
fibromyalgia (1005) depressed mood (130)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
629
Tried for
fibromyalgia (587) pain (168)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
618
Tried for
fibromyalgia (605) pain (89)
4 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
270
Tried for
pain (167) fibromyalgia (160)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
190
Tried for
fibromyalgia (154) pain (84)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
165
Tried for
fibromyalgia (131) pain (83)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
126
Tried for
pain (100) fibromyalgia (70)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
99
Tried for
fibromyalgia (66) pain (56)
2 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
82
Tried for
fibromyalgia (78) muscle pain (4)
2 more
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
78
Tried for
fibromyalgia (76) pain (15)
1 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (611 evaluations)
Side effects
weight gain nausea 198 more
Total evaluations
645
Tried for
fibromyalgia (1005) depressed mood (130)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (354 evaluations)
Side effects
weight gain dizziness 139 more
Total evaluations
389
Tried for
fibromyalgia (587) pain (168)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (358 evaluations)
Side effects
weight gain dizziness 145 more
Total evaluations
373
Tried for
fibromyalgia (605) pain (89)
4 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (86 evaluations)
Side effects
nausea drowsiness 36 more
Total evaluations
163
Tried for
pain (167) fibromyalgia (160)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (127 evaluations)
Side effects
dry mouth weight gain 53 more
Total evaluations
166
Tried for
fibromyalgia (154) pain (84)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (77 evaluations)
Side effects
drowsiness sleepiness 32 more
Total evaluations
109
Tried for
fibromyalgia (131) pain (83)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (52 evaluations)
Side effects
constipation drowsiness 19 more
Total evaluations
64
Tried for
pain (100) fibromyalgia (70)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (33 evaluations)
Side effects
nausea stomach pain 18 more
Total evaluations
59
Tried for
fibromyalgia (66) pain (56)
2 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (40 evaluations)
Side effects
drowsiness sleepiness 16 more
Total evaluations
45
Tried for
fibromyalgia (78) muscle pain (4)
2 more
Treatment name(s)

(Savella)
Perceived effectiveness
for fibromyalgia (47 evaluations)
Side effects
nausea insomnia 30 more
Total evaluations
49
Tried for
fibromyalgia (76) pain (15)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 65
20s 1790
30s 8537
40s 24354
50s 34761
60s 23243
70+ 5665
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6311
20-29 years 9375
30-39 years 13404
40-49 years 9962
50-59 years 3475
60-69 years 492
70+ years 66

Distribution of sex

Sex
Sex Proportion # of patients
Male 3681
Female 95225

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48887
Not Diagnosed 2983

These charts show data from fibromyalgia patients who have completed their condition history
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