Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1,579
Tried for
fibromyalgia (1549) depressed mood (202)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1,052
Tried for
fibromyalgia (1033) pain (150)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
907
Tried for
fibromyalgia (836) pain (276)
6 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
460
Tried for
fibromyalgia (287) pain (284)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
309
Tried for
fibromyalgia (255) pain (144)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
235
Tried for
fibromyalgia (194) pain (115)
5 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
211
Tried for
pain (170) fibromyalgia (127)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
144
Tried for
fibromyalgia (103) pain (85)
1 more
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
127
Tried for
fibromyalgia (122) pain (32)
1 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
121
Tried for
fibromyalgia (118) pain (4)
3 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (881 evaluations)
Side effects
weight gain nausea 260 more
Total evaluations
946
Tried for
fibromyalgia (1549) depressed mood (202)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (531 evaluations)
Side effects
weight gain dizziness 202 more
Total evaluations
553
Tried for
fibromyalgia (1033) pain (150)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (479 evaluations)
Side effects
weight gain dizziness 174 more
Total evaluations
536
Tried for
fibromyalgia (836) pain (276)
6 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for fibromyalgia (165 evaluations)
Side effects
nausea drowsiness 66 more
Total evaluations
264
Tried for
fibromyalgia (287) pain (284)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (174 evaluations)
Side effects
dry mouth weight gain 75 more
Total evaluations
244
Tried for
fibromyalgia (255) pain (144)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (132 evaluations)
Side effects
drowsiness sleepiness 41 more
Total evaluations
172
Tried for
fibromyalgia (194) pain (115)
5 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (72 evaluations)
Side effects
constipation drowsiness 26 more
Total evaluations
92
Tried for
pain (170) fibromyalgia (127)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (53 evaluations)
Side effects
nausea stomach pain 29 more
Total evaluations
81
Tried for
fibromyalgia (103) pain (85)
1 more
Treatment name(s)

(Savella)
Perceived effectiveness
for fibromyalgia (74 evaluations)
Side effects
nausea excessive sweating 47 more
Total evaluations
78
Tried for
fibromyalgia (122) pain (32)
1 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (52 evaluations)
Side effects
drowsiness sleepiness 16 more
Total evaluations
56
Tried for
fibromyalgia (118) pain (4)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 96
20s 2,044
30s 9,355
40s 24,799
50s 32,631
60s 19,413
70+ 4,075
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6,234
20-29 years 9,247
30-39 years 13,198
40-49 years 9,809
50-59 years 3,441
60-69 years 489
70+ years 64

Distribution of sex

Sex
Sex Proportion # of patients
Male 3,415
Female 89,308

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 47,740
Not Diagnosed 2,965

These charts show data from fibromyalgia patients who have completed their condition history
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