Fibromyalgia

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with Fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Fibromyalgia

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2,005
Tried for
Fibromyalgia (1986) Depressed mood (284)
9 more
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Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1,692
Tried for
Fibromyalgia (1664) Pain (210)
9 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1,017
Tried for
Fibromyalgia (914) Pain (347)
10 more
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
751
Tried for
Fibromyalgia (510) Pain (476)
6 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
623
Tried for
Fibromyalgia (453) Insomnia (311)
7 more
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
483
Tried for
Fibromyalgia (321) Muscle spasms (274)
6 more
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Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
482
Tried for
Fibromyalgia (465) Pain (105)
6 more
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Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
461
Tried for
Pain (334) Fibromyalgia (262)
5 more
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Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
227
Tried for
Fibromyalgia (148) Muscle spasms (142)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
195
Tried for
Fibromyalgia (132) Pain (129)
3 more

Data from patients with Fibromyalgia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Fibromyalgia

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Fibromyalgia (827 evaluations)
Side effects
Nausea Weight gain 324 more
How many evaluations
866
Tried for
Fibromyalgia (1986) Depressed mood (284)
9 more
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Fibromyalgia (629 evaluations)
Side effects
Weight gain Dizziness 315 more
How many evaluations
686
Tried for
Fibromyalgia (1664) Pain (210)
9 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Fibromyalgia (396 evaluations)
Side effects
Weight gain Drowsiness 176 more
How many evaluations
457
Tried for
Fibromyalgia (914) Pain (347)
10 more
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Fibromyalgia (199 evaluations)
Side effects
Constipation Nausea 92 more
How many evaluations
306
Tried for
Fibromyalgia (510) Pain (476)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Fibromyalgia (246 evaluations)
Side effects
Dry mouth Weight gain 116 more
How many evaluations
358
Tried for
Fibromyalgia (453) Insomnia (311)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Fibromyalgia (155 evaluations)
Side effects
Drowsiness Sleepiness 43 more
How many evaluations
224
Tried for
Fibromyalgia (321) Muscle spasms (274)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Savella)
Perceived effectiveness
for Fibromyalgia (244 evaluations)
Side effects
Nausea Headaches 125 more
How many evaluations
249
Tried for
Fibromyalgia (465) Pain (105)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (128 evaluations)
Side effects
Constipation Drowsiness 60 more
How many evaluations
182
Tried for
Pain (334) Fibromyalgia (262)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for Fibromyalgia (42 evaluations)
Side effects
Sleepiness Dizziness 19 more
How many evaluations
71
Tried for
Fibromyalgia (148) Muscle spasms (142)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Mobic)
Perceived effectiveness
for Fibromyalgia (48 evaluations)
Side effects
Allergic reaction Anxious mood 22 more
How many evaluations
74
Tried for
Fibromyalgia (132) Pain (129)
3 more

Data from patients with Fibromyalgia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 107
20s 2,072
30s 7,549
40s 16,437
50s 18,543
60s 8,500
70+ 1,282

Sex

Distribution of sex

96% Female
4% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5,170
20-29 years 7,279
30-39 years 9,965
40-49 years 7,090
50-59 years 2,362
60-69 years 301
70+ years 40

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 35,654
Not Diagnosed 2,733

These charts show data from Fibromyalgia patients who have completed their condition history
Last updated: