Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1,624
Tried for
fibromyalgia (1595) depressed mood (208)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1,074
Tried for
fibromyalgia (1055) pain (150)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
912
Tried for
fibromyalgia (841) pain (285)
6 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
470
Tried for
fibromyalgia (294) pain (292)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
320
Tried for
fibromyalgia (266) pain (151)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
244
Tried for
fibromyalgia (204) pain (118)
5 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
215
Tried for
pain (173) fibromyalgia (130)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
147
Tried for
fibromyalgia (105) pain (89)
1 more
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
135
Tried for
fibromyalgia (130) pain (32)
1 more
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
126
Tried for
depressed mood (84) fibromyalgia (44)
3 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (901 evaluations)
Side effects
weight gain nausea 267 more
Total evaluations
963
Tried for
fibromyalgia (1595) depressed mood (208)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (546 evaluations)
Side effects
weight gain dizziness 216 more
Total evaluations
569
Tried for
fibromyalgia (1055) pain (150)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (484 evaluations)
Side effects
weight gain dizziness 175 more
Total evaluations
541
Tried for
fibromyalgia (841) pain (285)
6 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for fibromyalgia (163 evaluations)
Side effects
drowsiness nausea 67 more
Total evaluations
260
Tried for
fibromyalgia (294) pain (292)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (193 evaluations)
Side effects
dry mouth weight gain 83 more
Total evaluations
262
Tried for
fibromyalgia (266) pain (151)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (133 evaluations)
Side effects
drowsiness sleepiness 40 more
Total evaluations
172
Tried for
fibromyalgia (204) pain (118)
5 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (79 evaluations)
Side effects
constipation drowsiness 25 more
Total evaluations
98
Tried for
pain (173) fibromyalgia (130)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (54 evaluations)
Side effects
nausea stomach pain 29 more
Total evaluations
83
Tried for
fibromyalgia (105) pain (89)
1 more
Treatment name(s)

(Savella)
Perceived effectiveness
for fibromyalgia (88 evaluations)
Side effects
nausea excessive sweating 55 more
Total evaluations
92
Tried for
fibromyalgia (130) pain (32)
1 more
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (50 evaluations)
Side effects
dry mouth anxious mood 66 more
Total evaluations
81
Tried for
depressed mood (84) fibromyalgia (44)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 94
20s 2,091
30s 9,480
40s 24,893
50s 32,485
60s 19,116
70+ 3,947
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6,217
20-29 years 9,205
30-39 years 13,159
40-49 years 9,773
50-59 years 3,437
60-69 years 490
70+ years 64

Sex

Distribution of sex

96% Female
4% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 46,070
Not Diagnosed 3,082

These charts show data from fibromyalgia patients who have completed their condition history
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