Peripheral retinal degeneration

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What is peripheral retinal degeneration?

Peripheral retinal degenerations usually start in the mid peripheral retina of the eye, in an area surrounding the central retina. Later during the course of the changes peripheral retina may lose its function. Eventually only the central retina functions, the person has tunnel vision.

Common symptoms reported by people with peripheral retinal degeneration

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with peripheral retinal degeneration

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Supplement
How many have tried
1
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Lidocaine Infusion)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Mobility scooter)
Type
Equipment
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(NatureMade Vitamin B12)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)

Data from patients with peripheral retinal degeneration, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with peripheral retinal degeneration

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for peripheral retinal degeneration (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Nuvigil)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
Total evaluations
2
Tried for
fatigue (1)
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Lidocaine Infusion)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Mobility scooter)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(NatureMade Vitamin B12)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with peripheral retinal degeneration, who reported starting treatments within the last 5 years.
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Who has peripheral retinal degeneration on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 5
40s 3
50s 4
60s 2
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 1
30-39 years 2
40-49 years 2
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 6
Female 11

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9
Not Diagnosed 0

These charts show data from peripheral retinal degeneration patients who have completed their condition history
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