Thrombotic thrombocytopenic purpura

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What is thrombotic thrombocytopenic purpura?

Thrombotic thrombocytopenic purpura (TTP) is a rare blood condition. It causes blood clots to form in small blood vessels throughout the body. The blood clots can cause serious problems if they block the blood vessels and limit blood flow to the brain, kidneys, or heart.

Common symptoms reported by people with thrombotic thrombocytopenic purpura

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with thrombotic thrombocytopenic purpura

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Procedures
How many have tried
2
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
1
Treatment name(s)
Type
Procedures
How many have tried
1
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)
Type
Prescription Drug
How many have tried
1

Data from patients with thrombotic thrombocytopenic purpura, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with thrombotic thrombocytopenic purpura

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for thrombotic thrombocytopenic purpura (2 evaluations)
Side effects
aphasia increased anxiety 5 more
Total evaluations
2
Treatment name(s)

(Deltasone)
Perceived effectiveness
for thrombotic thrombocytopenic purpura (2 evaluations)
Side effects
sleeplessness
Total evaluations
2
Treatment name(s)

(Abilify)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)
Perceived effectiveness
for thrombotic thrombocytopenic purpura (1 evaluation)
Side effects
hives (urticaria) muscle rigidity
Total evaluations
1
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)
Perceived effectiveness
for thrombotic thrombocytopenic purpura (1 evaluation)
Side effects
leukopenia numbness in hands
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with thrombotic thrombocytopenic purpura, who reported starting treatments within the last 5 years.
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Who has thrombotic thrombocytopenic purpura on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 8
30s 15
40s 16
50s 11
60s 5
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 6
30-39 years 6
40-49 years 4
50-59 years 3
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 8
Female 48

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 32
Not Diagnosed 1

These charts show data from TPP patients who have completed their condition history
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