Hypoparathyroidism

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is hypoparathyroidism?

Hypoparathyroidism is is an endocrine disorder in which the parathyroid glands in the neck do not produce enough parathyroid hormone (PTH).

Common symptoms reported by people with hypoparathyroidism

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with hypoparathyroidism

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cal-600)
Type
Supplement
How many have tried
2
Tried for
hypoparathyroidism (2)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(NatureMade Vitamin D3)
Type
Prescription Drug
How many have tried
2
Tried for
hypoparathyroidism (2)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Salonpas)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Physical Therapy
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
hypoparathyroidism (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with hypoparathyroidism, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with hypoparathyroidism

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cal-600)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hypoparathyroidism (2)
Treatment name(s)

(Lyrica)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(NatureMade Vitamin D3)
Perceived effectiveness
for hypoparathyroidism (1 evaluation)
Side effects
increased urination metallic taste in mouth 1 more
Total evaluations
1
Tried for
hypoparathyroidism (2)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Salonpas)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)
Perceived effectiveness
for hypoparathyroidism (1 evaluation)
Side effects
frequent urination metallic taste in mouth
Total evaluations
1
Tried for
hypoparathyroidism (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hypoparathyroidism, who reported starting treatments within the last 5 years.
Last updated:

Who has hypoparathyroidism on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 7
30s 19
40s 35
50s 45
60s 24
70+ 15
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 10
30-39 years 20
40-49 years 22
50-59 years 8
60-69 years 6
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 22
Female 125

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 91
Not Diagnosed 3

These charts show data from hypoparathyroidism patients who have completed their condition history
Last updated: