Acromegaly syndrome

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What is acromegaly syndrome?

Acromegaly is a hormonal disorder that results from too much growth hormone (GH) in the body. It is most often diagnosed in middle-aged adults, although symptoms can appear at any age.

Common symptoms reported by people with acromegaly syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with acromegaly syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
acromegaly syndrome (1)
Treatment name(s)

(Morphine ER)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Sandostatin)
Type
Prescription Drug
How many have tried
1
Tried for
acromegaly syndrome (1)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Stretch Yoga)
Type
Exercise
How many have tried
1
Tried for
pain (1)

Data from patients with acromegaly syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with acromegaly syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
increased anxiety
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)
Perceived effectiveness
for acromegaly syndrome (1 evaluation)
Side effects
Total evaluations
1
Tried for
acromegaly syndrome (1)
Treatment name(s)

(Morphine ER)
Perceived effectiveness
for pain (1 evaluation)
Side effects
drowsiness
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Sandostatin)
Perceived effectiveness
for acromegaly syndrome (1 evaluation)
Side effects
cramps pale stool
Total evaluations
1
Tried for
acromegaly syndrome (1)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Stretch Yoga)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with acromegaly syndrome, who reported starting treatments within the last 5 years.
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Who has acromegaly syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 4
30s 12
40s 25
50s 20
60s 6
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 6
30-39 years 8
40-49 years 5
50-59 years 3
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 26
Female 48

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 31
Not Diagnosed 2

These charts show data from acromegaly syndrome patients who have completed their condition history
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