Multiple myeloma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is multiple myeloma?

Multiple myeloma is a bone marrow-based cancer that arises in plasma cells, a type of white blood cells that produce proteins that help the body fight infections (known as antibodies). Multiple myeloma occurs when plasma cells become abnormal and begin to divide and reproduce in an uncontrolled way.

Common symptoms reported by people with multiple myeloma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple myeloma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Autologous Stem Cell Transplant)
Type
Procedures
How many have tried
177
Tried for
multiple myeloma (177)
Treatment name(s)

(Revlimid)
Type
Prescription Drug
How many have tried
110
Tried for
multiple myeloma (110)
Type
Prescription Drug
How many have tried
69
Tried for
multiple myeloma (69)
Type
Prescription Drug
How many have tried
68
Tried for
multiple myeloma (68)
Treatment name(s)

(Velcade)
Type
Prescription Drug
How many have tried
55
Tried for
multiple myeloma (55)
Treatment name(s)
Type
Prescription Drug
How many have tried
42
Tried for
multiple myeloma (42)
Treatment name(s)

(Decadron)
Type
Prescription Drug
How many have tried
41
Tried for
multiple myeloma (41)
Type
Prescription Drug
How many have tried
38
Tried for
multiple myeloma (38)
Treatment name(s)
Type
Prescription Drug
How many have tried
38
Tried for
multiple myeloma (38)
Treatment name(s)

(Pomalyst)
Type
Prescription Drug
How many have tried
25
Tried for
multiple myeloma (25)

Data from patients with multiple myeloma, who reported starting treatments within the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
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Compare treatments taken by people with multiple myeloma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Autologous Stem Cell Transplant)
Perceived effectiveness
for multiple myeloma (38 evaluations)
Side effects
Hospitalization diarrhea 29 more
Total evaluations
38
Tried for
multiple myeloma (177)
Treatment name(s)

(Revlimid)
Perceived effectiveness
for multiple myeloma (94 evaluations)
Side effects
diarrhea fatigue 46 more
Total evaluations
95
Tried for
multiple myeloma (110)
Perceived effectiveness
for multiple myeloma (23 evaluations)
Side effects
fatigue constipation 16 more
Total evaluations
23
Tried for
multiple myeloma (69)
Perceived effectiveness
for multiple myeloma (31 evaluations)
Side effects
fatigue peripheral neuropathy 20 more
Total evaluations
31
Tried for
multiple myeloma (68)
Treatment name(s)

(Velcade)
Perceived effectiveness
for multiple myeloma (37 evaluations)
Side effects
fatigue peripheral neuropathy 24 more
Total evaluations
37
Tried for
multiple myeloma (55)
Treatment name(s)
Perceived effectiveness
for multiple myeloma (14 evaluations)
Side effects
back pain back pain when sitting 13 more
Total evaluations
14
Tried for
multiple myeloma (42)
Treatment name(s)

(Decadron)
Perceived effectiveness
for multiple myeloma (30 evaluations)
Side effects
elevated blood sugar (hyperglycemia) insomnia 33 more
Total evaluations
30
Tried for
multiple myeloma (41)
Perceived effectiveness
for multiple myeloma (21 evaluations)
Side effects
diarrhea fatigue 27 more
Total evaluations
21
Tried for
multiple myeloma (38)
Treatment name(s)
Perceived effectiveness
for multiple myeloma (6 evaluations)
Side effects
difficulty falling asleep fatigue 1 more
Total evaluations
6
Tried for
multiple myeloma (38)
Treatment name(s)

(Pomalyst)
Perceived effectiveness
for multiple myeloma (13 evaluations)
Side effects
fatigue dizziness 13 more
Total evaluations
14
Tried for
multiple myeloma (25)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple myeloma, who reported starting treatments within the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
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Who has multiple myeloma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 18
30s 90
40s 443
50s 1,211
60s 1,835
70+ 1,184
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 6
30-39 years 59
40-49 years 177
50-59 years 284
60-69 years 268
70+ years 61

Sex

Distribution of sex

61% Female
39% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3,666
Not Diagnosed 282

These charts show data from multiple myeloma patients who have completed their condition history
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