Multiple myeloma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is multiple myeloma?

Multiple myeloma is a bone marrow-based cancer that arises in plasma cells, a type of white blood cells that produce proteins that help the body fight infections (known as antibodies). Multiple myeloma occurs when plasma cells become abnormal and begin to divide and reproduce in an uncontrolled way.

Common symptoms reported by people with multiple myeloma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with multiple myeloma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Autologous Stem Cell Transplant)
Type
Procedures
How many have tried
186
Tried for
multiple myeloma (186)
Treatment name(s)

(Revlimid)
Type
Prescription Drug
How many have tried
109
Tried for
multiple myeloma (109)
Type
Prescription Drug
How many have tried
74
Tried for
multiple myeloma (74)
Type
Prescription Drug
How many have tried
69
Tried for
multiple myeloma (69)
Treatment name(s)

(Velcade)
Type
Prescription Drug
How many have tried
56
Tried for
multiple myeloma (56)
Treatment name(s)
Type
Prescription Drug
How many have tried
44
Tried for
multiple myeloma (44)
Type
Prescription Drug
How many have tried
42
Tried for
multiple myeloma (42)
Treatment name(s)

(Decadron)
Type
Prescription Drug
How many have tried
40
Tried for
multiple myeloma (40)
Treatment name(s)
Type
Prescription Drug
How many have tried
38
Tried for
multiple myeloma (38)
Treatment name(s)

(Pomalyst)
Type
Prescription Drug
How many have tried
24
Tried for
multiple myeloma (24)

Data from patients with multiple myeloma, who reported starting treatments within the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
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Compare treatments taken by people with multiple myeloma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Autologous Stem Cell Transplant)
Perceived effectiveness
for multiple myeloma (36 evaluations)
Side effects
Hospitalization Fatigue 28 more
Total evaluations
36
Tried for
multiple myeloma (186)
Treatment name(s)

(Revlimid)
Perceived effectiveness
for multiple myeloma (92 evaluations)
Side effects
Diarrhea Fatigue 46 more
Total evaluations
93
Tried for
multiple myeloma (109)
Perceived effectiveness
for multiple myeloma (25 evaluations)
Side effects
Fatigue Constipation 17 more
Total evaluations
25
Tried for
multiple myeloma (74)
Perceived effectiveness
for multiple myeloma (30 evaluations)
Side effects
Fatigue peripheral neuropathy 20 more
Total evaluations
30
Tried for
multiple myeloma (69)
Treatment name(s)

(Velcade)
Perceived effectiveness
for multiple myeloma (37 evaluations)
Side effects
Fatigue peripheral neuropathy 22 more
Total evaluations
37
Tried for
multiple myeloma (56)
Treatment name(s)
Perceived effectiveness
for multiple myeloma (14 evaluations)
Side effects
Back pain Back pain when sitting 13 more
Total evaluations
14
Tried for
multiple myeloma (44)
Perceived effectiveness
for multiple myeloma (19 evaluations)
Side effects
Diarrhea Fatigue 25 more
Total evaluations
19
Tried for
multiple myeloma (42)
Treatment name(s)

(Decadron)
Perceived effectiveness
for multiple myeloma (28 evaluations)
Side effects
Elevated blood sugar (hyperglycemia) insomnia 33 more
Total evaluations
28
Tried for
multiple myeloma (40)
Treatment name(s)
Perceived effectiveness
for multiple myeloma (5 evaluations)
Side effects
Fatigue Muscle fatigue
Total evaluations
5
Tried for
multiple myeloma (38)
Treatment name(s)

(Pomalyst)
Perceived effectiveness
for multiple myeloma (14 evaluations)
Side effects
Fatigue Dizziness 13 more
Total evaluations
15
Tried for
multiple myeloma (24)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple myeloma, who reported starting treatments within the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
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Who has multiple myeloma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 19
30s 96
40s 467
50s 1,225
60s 1,827
70+ 1,133
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 6
30-39 years 59
40-49 years 176
50-59 years 283
60-69 years 269
70+ years 61

Sex

Distribution of sex

61% Female
39% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3,657
Not Diagnosed 282

These charts show data from multiple myeloma patients who have completed their condition history
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