Multiple myeloma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is multiple myeloma?

Multiple myeloma is a bone marrow-based cancer that arises in plasma cells, a type of white blood cells that produce proteins that help the body fight infections (known as antibodies). Multiple myeloma occurs when plasma cells become abnormal and begin to divide and reproduce in an uncontrolled way.

Common symptoms reported by people with multiple myeloma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple myeloma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Autologous Stem Cell Transplant)
Type
Procedures
How many have tried
138
Tried for
multiple myeloma (138)
Treatment name(s)

(Revlimid)
Type
Prescription Drug
How many have tried
100
Tried for
multiple myeloma (100)
Type
Prescription Drug
How many have tried
58
Tried for
multiple myeloma (58)
Type
Prescription Drug
How many have tried
57
Tried for
multiple myeloma (57)
Treatment name(s)

(Velcade)
Type
Prescription Drug
How many have tried
50
Tried for
multiple myeloma (50)
Treatment name(s)

(Decadron)
Type
Prescription Drug
How many have tried
40
Tried for
multiple myeloma (40)
Treatment name(s)
Type
Prescription Drug
How many have tried
36
Tried for
multiple myeloma (36)
Type
Prescription Drug
How many have tried
31
Tried for
multiple myeloma (31)
Treatment name(s)
Type
Prescription Drug
How many have tried
26
Tried for
multiple myeloma (26)
Treatment name(s)

(Pomalyst)
Type
Prescription Drug
How many have tried
19
Tried for
multiple myeloma (19)

Data from patients with multiple myeloma, who reported starting treatments within the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
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Compare treatments taken by people with multiple myeloma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Autologous Stem Cell Transplant)
Perceived effectiveness
for multiple myeloma (36 evaluations)
Side effects
Hospitalization diarrhea 30 more
Total evaluations
36
Tried for
multiple myeloma (138)
Treatment name(s)

(Revlimid)
Perceived effectiveness
for multiple myeloma (101 evaluations)
Side effects
diarrhea fatigue 54 more
Total evaluations
102
Tried for
multiple myeloma (100)
Perceived effectiveness
for multiple myeloma (27 evaluations)
Side effects
fatigue constant tiredness 19 more
Total evaluations
27
Tried for
multiple myeloma (58)
Perceived effectiveness
for multiple myeloma (24 evaluations)
Side effects
fatigue constipation 16 more
Total evaluations
24
Tried for
multiple myeloma (57)
Treatment name(s)

(Velcade)
Perceived effectiveness
for multiple myeloma (27 evaluations)
Side effects
fatigue peripheral neuropathy 16 more
Total evaluations
27
Tried for
multiple myeloma (50)
Treatment name(s)

(Decadron)
Perceived effectiveness
for multiple myeloma (33 evaluations)
Side effects
sleepiness elevated blood sugar (hyperglycemia) 31 more
Total evaluations
33
Tried for
multiple myeloma (40)
Treatment name(s)
Perceived effectiveness
for multiple myeloma (15 evaluations)
Side effects
neuropathic pain in lower extremities back pain 13 more
Total evaluations
15
Tried for
multiple myeloma (36)
Perceived effectiveness
for multiple myeloma (20 evaluations)
Side effects
diarrhea fatigue 25 more
Total evaluations
20
Tried for
multiple myeloma (31)
Treatment name(s)
Perceived effectiveness
for multiple myeloma (3 evaluations)
Side effects
difficulty falling asleep fatigue
Total evaluations
3
Tried for
multiple myeloma (26)
Treatment name(s)

(Pomalyst)
Perceived effectiveness
for multiple myeloma (17 evaluations)
Side effects
fatigue dizziness 15 more
Total evaluations
18
Tried for
multiple myeloma (19)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple myeloma, who reported starting treatments within the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
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Who has multiple myeloma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 17
30s 78
40s 399
50s 1,165
60s 1,848
70+ 1,321
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 6
30-39 years 61
40-49 years 180
50-59 years 281
60-69 years 269
70+ years 61

Distribution of sex

Sex
Sex Proportion # of patients
Male 1,923
Female 2,988

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3,712
Not Diagnosed 284

These charts show data from multiple myeloma patients who have completed their condition history
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