Multiple myeloma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is multiple myeloma?

Multiple myeloma is a bone marrow-based cancer that arises in plasma cells, a type of white blood cells that produce proteins that help the body fight infections (known as antibodies). Multiple myeloma occurs when plasma cells become abnormal and begin to divide and reproduce in an uncontrolled way.

Common symptoms reported by people with multiple myeloma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with multiple myeloma

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Autologous Stem Cell Transplant)
Type
Procedures
How many have tried
192
Tried for
multiple myeloma (192)
Check to add this treatment to your profile
Treatment name(s)

(Revlimid)
Type
Prescription Drug
How many have tried
106
Tried for
multiple myeloma (106)
Check to add this treatment to your profile
Type
Prescription Drug
How many have tried
76
Tried for
multiple myeloma (76)
Check to add this treatment to your profile
Type
Prescription Drug
How many have tried
70
Tried for
multiple myeloma (70)
Check to add this treatment to your profile
Treatment name(s)

(Velcade)
Type
Prescription Drug
How many have tried
55
Tried for
multiple myeloma (55)
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
46
Tried for
multiple myeloma (46)
Check to add this treatment to your profile
Type
Prescription Drug
How many have tried
43
Tried for
multiple myeloma (43)
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
42
Tried for
multiple myeloma (42)
Check to add this treatment to your profile
Treatment name(s)

(Decadron)
Type
Prescription Drug
How many have tried
38
Tried for
multiple myeloma (38)
Check to add this treatment to your profile
Treatment name(s)

(Pomalyst)
Type
Prescription Drug
How many have tried
24
Tried for
multiple myeloma (24)

Data from patients with multiple myeloma, who reported starting treatments within the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with multiple myeloma

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Autologous Stem Cell Transplant)
Perceived effectiveness
for multiple myeloma (35 evaluations)
Side effects
Hospitalization Diarrhea 28 more
Total evaluations
35
Tried for
multiple myeloma (192)
Check to add this treatment to your profile
Treatment name(s)

(Revlimid)
Perceived effectiveness
for multiple myeloma (91 evaluations)
Side effects
Diarrhea Fatigue 46 more
Total evaluations
92
Tried for
multiple myeloma (106)
Check to add this treatment to your profile
Perceived effectiveness
for multiple myeloma (25 evaluations)
Side effects
Fatigue Constipation 17 more
Total evaluations
25
Tried for
multiple myeloma (76)
Check to add this treatment to your profile
Perceived effectiveness
for multiple myeloma (30 evaluations)
Side effects
Fatigue peripheral neuropathy 20 more
Total evaluations
30
Tried for
multiple myeloma (70)
Check to add this treatment to your profile
Treatment name(s)

(Velcade)
Perceived effectiveness
for multiple myeloma (36 evaluations)
Side effects
Fatigue peripheral neuropathy 22 more
Total evaluations
36
Tried for
multiple myeloma (55)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for multiple myeloma (14 evaluations)
Side effects
Back pain Back pain when sitting 13 more
Total evaluations
14
Tried for
multiple myeloma (46)
Check to add this treatment to your profile
Perceived effectiveness
for multiple myeloma (20 evaluations)
Side effects
Diarrhea Fatigue 25 more
Total evaluations
20
Tried for
multiple myeloma (43)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for multiple myeloma (5 evaluations)
Side effects
Fatigue Muscle fatigue
Total evaluations
5
Tried for
multiple myeloma (42)
Check to add this treatment to your profile
Treatment name(s)

(Decadron)
Perceived effectiveness
for multiple myeloma (28 evaluations)
Side effects
Elevated blood sugar (hyperglycemia) Fatigue 32 more
Total evaluations
28
Tried for
multiple myeloma (38)
Check to add this treatment to your profile
Treatment name(s)

(Pomalyst)
Perceived effectiveness
for multiple myeloma (14 evaluations)
Side effects
Fatigue Dizziness 13 more
Total evaluations
15
Tried for
multiple myeloma (24)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple myeloma, who reported starting treatments within the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
Last updated:
You’ve tried this treatment.

Who has multiple myeloma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 20
30s 95
40s 473
50s 1,258
60s 1,809
70+ 1,096
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 6
30-39 years 59
40-49 years 174
50-59 years 281
60-69 years 267
70+ years 60

Sex

Distribution of sex

61% Female
39% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3,646
Not Diagnosed 281

These charts show data from multiple myeloma patients who have completed their condition history
Last updated: