Multiple myeloma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is multiple myeloma?

Multiple myeloma is a bone marrow-based cancer that arises in plasma cells, a type of white blood cells that produce proteins that help the body fight infections (known as antibodies). Multiple myeloma occurs when plasma cells become abnormal and begin to divide and reproduce in an uncontrolled way.

Common symptoms reported by people with multiple myeloma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple myeloma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Autologous Stem Cell Transplant)
Type
Procedures
How many have tried
145
Tried for
multiple myeloma (145)
Treatment name(s)

(Revlimid)
Type
Prescription Drug
How many have tried
101
Tried for
multiple myeloma (101)
Type
Prescription Drug
How many have tried
61
Tried for
multiple myeloma (61)
Type
Prescription Drug
How many have tried
59
Tried for
multiple myeloma (59)
Treatment name(s)

(Velcade)
Type
Prescription Drug
How many have tried
51
Tried for
multiple myeloma (51)
Treatment name(s)

(Decadron)
Type
Prescription Drug
How many have tried
40
Tried for
multiple myeloma (40)
Treatment name(s)
Type
Prescription Drug
How many have tried
36
Tried for
multiple myeloma (36)
Type
Prescription Drug
How many have tried
35
Tried for
multiple myeloma (35)
Treatment name(s)
Type
Prescription Drug
How many have tried
27
Tried for
multiple myeloma (27)
Treatment name(s)

(Pomalyst)
Type
Prescription Drug
How many have tried
20
Tried for
multiple myeloma (20)

Data from patients with multiple myeloma, who reported starting treatments within the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
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Compare treatments taken by people with multiple myeloma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Autologous Stem Cell Transplant)
Perceived effectiveness
for multiple myeloma (35 evaluations)
Side effects
Hospitalization diarrhea 29 more
Total evaluations
35
Tried for
multiple myeloma (145)
Treatment name(s)

(Revlimid)
Perceived effectiveness
for multiple myeloma (99 evaluations)
Side effects
diarrhea fatigue 53 more
Total evaluations
100
Tried for
multiple myeloma (101)
Perceived effectiveness
for multiple myeloma (28 evaluations)
Side effects
fatigue constant tiredness 20 more
Total evaluations
28
Tried for
multiple myeloma (61)
Perceived effectiveness
for multiple myeloma (24 evaluations)
Side effects
fatigue constipation 16 more
Total evaluations
24
Tried for
multiple myeloma (59)
Treatment name(s)

(Velcade)
Perceived effectiveness
for multiple myeloma (28 evaluations)
Side effects
fatigue peripheral neuropathy 16 more
Total evaluations
28
Tried for
multiple myeloma (51)
Treatment name(s)

(Decadron)
Perceived effectiveness
for multiple myeloma (32 evaluations)
Side effects
sleepiness elevated blood sugar (hyperglycemia) 31 more
Total evaluations
32
Tried for
multiple myeloma (40)
Treatment name(s)
Perceived effectiveness
for multiple myeloma (15 evaluations)
Side effects
neuropathic pain in feet and legs back pain 13 more
Total evaluations
15
Tried for
multiple myeloma (36)
Perceived effectiveness
for multiple myeloma (21 evaluations)
Side effects
diarrhea fatigue 27 more
Total evaluations
21
Tried for
multiple myeloma (35)
Treatment name(s)
Perceived effectiveness
for multiple myeloma (3 evaluations)
Side effects
difficulty falling asleep fatigue
Total evaluations
3
Tried for
multiple myeloma (27)
Treatment name(s)

(Pomalyst)
Perceived effectiveness
for multiple myeloma (15 evaluations)
Side effects
fatigue dizziness 13 more
Total evaluations
16
Tried for
multiple myeloma (20)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple myeloma, who reported starting treatments within the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
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Who has multiple myeloma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 17
30s 82
40s 405
50s 1,187
60s 1,839
70+ 1,287
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 6
30-39 years 60
40-49 years 179
50-59 years 282
60-69 years 269
70+ years 61

Distribution of sex

Sex
Sex Proportion # of patients
Male 1,918
Female 2,981

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3,701
Not Diagnosed 284

These charts show data from multiple myeloma patients who have completed their condition history
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