Occipital neuralgia

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What is occipital neuralgia?

Occipital neuralgia is a distinct type of headache characterized by piercing, throbbing, or electric-shock-like chronic pain in the upper neck, back of the head, and behind the ears, usually on one side of the head.

Common symptoms reported by people with occipital neuralgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with occipital neuralgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
8
Tried for
pain (7) occipital neuralgia (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
5
Tried for
pain (5)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
5
Tried for
pain (5)
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
4
Tried for
pain (2) anxious mood (1)
1 more
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (3) occipital neuralgia (1)
Treatment name(s)

(Aptiom)
Type
Prescription Drug
How many have tried
4
Tried for
occipital neuralgia (4)
Treatment name(s)

(Myofascial release)
Type
Physical Therapy
How many have tried
4
Tried for
occipital neuralgia (2) pain (2)
Treatment name(s)
Type
Procedures
How many have tried
4
Tried for
pain (3) occipital neuralgia (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
3
Tried for
pain (2) depressed mood (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (3) anxious mood (1)

Data from patients with occipital neuralgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with occipital neuralgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (5 evaluations)
Side effects
weight gain burning sensation 6 more
Total evaluations
6
Tried for
pain (7) occipital neuralgia (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (4 evaluations)
Side effects
drowsiness
Total evaluations
4
Tried for
pain (5)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (2 evaluations)
Side effects
constipation nausea 1 more
Total evaluations
2
Tried for
pain (5)
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
for pain (2 evaluations)
Side effects
drowsiness
Total evaluations
2
Tried for
pain (2) anxious mood (1)
1 more
Treatment name(s)

(Valium)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
agitation drowsiness
Total evaluations
5
Tried for
anxious mood (3) occipital neuralgia (1)
Treatment name(s)

(Aptiom)
Perceived effectiveness
for occipital neuralgia (4 evaluations)
Side effects
nausea acid reflux 3 more
Total evaluations
4
Tried for
occipital neuralgia (4)
Treatment name(s)

(Myofascial release)
Perceived effectiveness
for pain (1 evaluation)
Side effects
nausea and vomiting
Total evaluations
3
Tried for
occipital neuralgia (2) pain (2)
Treatment name(s)
Perceived effectiveness
for pain (4 evaluations)
Side effects
pain
Total evaluations
4
Tried for
pain (3) occipital neuralgia (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
excessive dry mouth
Total evaluations
2
Tried for
pain (2) depressed mood (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
anxiety attacks forgetting words 1 more
Total evaluations
3
Tried for
depressed mood (3) anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with occipital neuralgia, who reported starting treatments within the last 5 years.
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Who has occipital neuralgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 23
30s 62
40s 115
50s 105
60s 35
70+ 22
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 40
30-39 years 42
40-49 years 41
50-59 years 15
60-69 years 4
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 52
Female 314

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 182
Not Diagnosed 12

These charts show data from occipital neuralgia patients who have completed their condition history
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