Dermatomyositis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Dermatomyositis?

Dermatomyositis is one of a group of muscle diseases known as the inflammatory myopathies, which are characterized by chronic muscle inflammation accompanied by muscle weakness. The cardinal symptom is a skin rash that precedes, accompanies, or follows progressive muscle weakness.

Common symptoms reported by people with Dermatomyositis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Dermatomyositis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
11
Tried for
Dermatomyositis (11)
Check to add this treatment to your profile
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
6
Tried for
Dermatomyositis (6)
Check to add this treatment to your profile
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
5
Tried for
Dermatomyositis (5)
Check to add this treatment to your profile
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
3
Tried for
Dermatomyositis (3)
Check to add this treatment to your profile
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
2
Tried for
Anxious mood (2) Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Cortef)
Type
Prescription Drug
How many have tried
2
Tried for
Dermatomyositis (2)
Check to add this treatment to your profile
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
2
Tried for
Dermatomyositis (2)
Check to add this treatment to your profile
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
2
Tried for
Dermatomyositis (2)
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
2
Tried for
Insomnia (2) Anxious mood (1)

Data from patients with Dermatomyositis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Dermatomyositis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Perceived effectiveness
for Dermatomyositis (4 evaluations)
Side effects
Abdominal bloating Blurry vision 5 more
Total evaluations
4
Tried for
Dermatomyositis (11)
Check to add this treatment to your profile
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for Dermatomyositis (1 evaluation)
Side effects
Hair loss
Total evaluations
1
Tried for
Dermatomyositis (6)
Check to add this treatment to your profile
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for Dermatomyositis (3 evaluations)
Side effects
Headaches Fatigue 3 more
Total evaluations
4
Tried for
Dermatomyositis (5)
Check to add this treatment to your profile
Treatment name(s)

(Imuran)
Perceived effectiveness
for Dermatomyositis (2 evaluations)
Side effects
Allergic reaction Nausea
Total evaluations
2
Tried for
Dermatomyositis (3)
Check to add this treatment to your profile
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (2) Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Cortef)
Perceived effectiveness
for Dermatomyositis (1 evaluation)
Side effects
Total evaluations
1
Tried for
Dermatomyositis (2)
Check to add this treatment to your profile
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Dermatomyositis (1 evaluation)
Side effects
Hives (urticaria)
Total evaluations
1
Tried for
Dermatomyositis (2)
Check to add this treatment to your profile
Treatment name(s)

(Rituxan)
Perceived effectiveness
for Dermatomyositis (3 evaluations)
Side effects
Fatigue Headaches 1 more
Total evaluations
3
Tried for
Dermatomyositis (2)
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Insomnia (2) Anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Dermatomyositis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has Dermatomyositis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 10
30s 25
40s 36
50s 34
60s 24
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 11
30-39 years 18
40-49 years 21
50-59 years 11
60-69 years 1
70+ years 0

Sex

Distribution of sex

92% Female
8% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 77
Not Diagnosed 8

These charts show data from Dermatomyositis patients who have completed their condition history
Last updated: