Dermatomyositis

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is dermatomyositis?

Dermatomyositis is one of a group of muscle diseases known as the inflammatory myopathies, which are characterized by chronic muscle inflammation accompanied by muscle weakness. The cardinal symptom is a skin rash that precedes, accompanies, or follows progressive muscle weakness.

Common symptoms reported by people with dermatomyositis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for dermatomyositis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
161
Tried for
dermatomyositis (13)
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
52
Tried for
dermatomyositis (5)
Treatment name(s)

(Betnovate)
Type
Prescription Drug
How many have tried
28
Tried for
dermatomyositis (2)
Treatment name(s)

(Zyrtec)
Type
Over the Counter Drug
How many have tried
14
Tried for
dermatomyositis (2)
Treatment name(s)

(Clobex)
Type
Prescription Drug
How many have tried
26
Tried for
dermatomyositis (2)
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
32
Tried for
dermatomyositis (2)
Treatment name(s)

(Cortef)
Type
Prescription Drug
How many have tried
52
Tried for
dermatomyositis (1)

Data from patients with dermatomyositis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with dermatomyositis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for dermatomyositis (6 evaluations)
Side effects
insomnia abdominal bloating 7 more
Total evaluations
6
Tried for
dermatomyositis (13)
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
dermatomyositis (5)
Treatment name(s)

(Betnovate)
Perceived effectiveness
for dermatomyositis (1 evaluation)
Side effects
Total evaluations
1
Tried for
dermatomyositis (2)
Treatment name(s)

(Zyrtec)
Perceived effectiveness
for dermatomyositis (2 evaluations)
Side effects
Total evaluations
2
Tried for
dermatomyositis (2)
Treatment name(s)

(Clobex)
Perceived effectiveness
for dermatomyositis (2 evaluations)
Side effects
stinging pain
Total evaluations
2
Tried for
dermatomyositis (2)
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for dermatomyositis (1 evaluation)
Side effects
Total evaluations
1
Tried for
dermatomyositis (2)
Treatment name(s)

(Cortef)
Perceived effectiveness
for dermatomyositis (1 evaluation)
Side effects
Total evaluations
1
Tried for
dermatomyositis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with dermatomyositis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has dermatomyositis on PatientsLikeMe?

  • 0 new patients joined this month
  • 193 say dermatomyositis is their primary condition

Age
Age Proportion # of patients
<20 0
20s 18
30s 31
40s 51
50s 71
60s 59
70+ 9
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 13
30-39 years 25
40-49 years 27
50-59 years 13
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 21
Female 225

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 99
Not Diagnosed 9

These charts show data from dermatomyositis patients who have completed their condition history
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