Dermatomyositis

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What is Dermatomyositis?

Dermatomyositis is one of a group of muscle diseases known as the inflammatory myopathies, which are characterized by chronic muscle inflammation accompanied by muscle weakness. The cardinal symptom is a skin rash that precedes, accompanies, or follows progressive muscle weakness.

Common symptoms reported by people with Dermatomyositis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Dermatomyositis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
10
Tried for
Dermatomyositis (10)
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Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
5
Tried for
Dermatomyositis (5)
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Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
5
Tried for
Dermatomyositis (5)
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
2
Tried for
Insomnia (2)
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Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
2
Tried for
Dermatomyositis (2)
Check to add this treatment to your profile
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
2
Tried for
Anxious mood (2) Insomnia (1)
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Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
2
Tried for
Dermatomyositis (2)
Check to add this treatment to your profile
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
2
Tried for
Dermatomyositis (2)
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
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Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
2
Tried for
Insomnia (2) Anxious mood (1)

Data from patients with Dermatomyositis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Dermatomyositis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Perceived effectiveness
for Dermatomyositis (3 evaluations)
Side effects
Blurry vision Edema (fluid retention) 4 more
How many evaluations
3
Tried for
Dermatomyositis (10)
Check to add this treatment to your profile
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for Dermatomyositis (3 evaluations)
Side effects
Headaches Fatigue 3 more
How many evaluations
4
Tried for
Dermatomyositis (5)
Check to add this treatment to your profile
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for Dermatomyositis (1 evaluation)
Side effects
Hair loss
How many evaluations
1
Tried for
Dermatomyositis (5)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (3 evaluations)
Side effects
How many evaluations
3
Tried for
Insomnia (2)
Check to add this treatment to your profile
Treatment name(s)

(Imuran)
Perceived effectiveness
for Dermatomyositis (1 evaluation)
Side effects
Allergic reaction
How many evaluations
1
Tried for
Dermatomyositis (2)
Check to add this treatment to your profile
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (2) Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Dermatomyositis (1 evaluation)
Side effects
Hives (urticaria)
How many evaluations
1
Tried for
Dermatomyositis (2)
Check to add this treatment to your profile
Treatment name(s)

(Rituxan)
Perceived effectiveness
for Dermatomyositis (3 evaluations)
Side effects
Fatigue Headaches 1 more
How many evaluations
3
Tried for
Dermatomyositis (2)
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Insomnia (2) Anxious mood (1)

Data from patients with Dermatomyositis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Dermatomyositis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 10
30s 23
40s 37
50s 31
60s 23
70+ 2

Sex

Distribution of sex

92% Female
8% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 11
30-39 years 17
40-49 years 21
50-59 years 11
60-69 years 1
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 76
Not Diagnosed 8

These charts show data from Dermatomyositis patients who have completed their condition history
Last updated: