Cholesteatoma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is cholesteatoma?

Cholesteatoma is an abnormal skin growth in the middle ear behind the eardrum. It often develops as cysts or pouches that shed layers of old skin, which build up inside the middle ear.

Common symptoms reported by people with cholesteatoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with cholesteatoma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)
Type
Lifestyle Modification
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Surgery
How many have tried
1
Tried for
cholesteatoma (1)
Treatment name(s)

(Paxil)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)
Type
Lifestyle Modification
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)

Data from patients with cholesteatoma, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with cholesteatoma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
Total evaluations
3
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
decreased sex drive (libido)
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
3
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
for cholesteatoma (2 evaluations)
Side effects
Total evaluations
2
Tried for
cholesteatoma (1)
Treatment name(s)

(Paxil)
Perceived effectiveness
for depressed mood (4 evaluations)
Side effects
Total evaluations
4
Tried for
depressed mood (1)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with cholesteatoma, who reported starting treatments within the last 5 years.
Last updated:

Who has cholesteatoma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 4
30s 13
40s 12
50s 12
60s 4
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 6
30-39 years 4
40-49 years 1
50-59 years 1
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 16
Female 36

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 35
Not Diagnosed 2

These charts show data from cholesteatoma patients who have completed their condition history
Last updated: