Retinitis pigmentosa
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What is retinitis pigmentosa?
Retinitis pigmentosa refers to a group of inherited diseases causing retinal degeneration and eventually blindness. There are multiple genes that, when mutated, can cause the Retinitis pigmentosa.
Common symptoms reported by people with retinitis pigmentosa
Treatments taken by people for retinitis pigmentosa
Let’s build this page together! When you share what it’s like to have retinitis pigmentosa through your profile, those stories and data appear here too.
Got a question about living with retinitis pigmentosa? Members in the forum might have the answers.
Compare treatments taken by people with retinitis pigmentosa
Let’s build this page together! When you share what it’s like to have retinitis pigmentosa through your profile, those stories and data appear here too.
Got a question about living with retinitis pigmentosa? Members in the forum might have the answers.
Who has retinitis pigmentosa on PatientsLikeMe?
- 0 new patients joined this month
- 78 say retinitis pigmentosa is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 3 | |
| 20s | 7 | |
| 30s | 20 | |
| 40s | 20 | |
| 50s | 23 | |
| 60s | 11 | |
| 70+ | 6 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 9 | |
| 20-29 years | 5 | |
| 30-39 years | 7 | |
| 40-49 years | 1 | |
| 50-59 years | 2 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 48 | |
| Female | 44 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 32 | |
| Not Diagnosed | 0 |