Retinitis pigmentosa

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What is retinitis pigmentosa?

Retinitis pigmentosa refers to a group of inherited diseases causing retinal degeneration and eventually blindness. There are multiple genes that, when mutated, can cause the Retinitis pigmentosa.

Common symptoms reported by people with retinitis pigmentosa

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for retinitis pigmentosa

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Got a question about living with retinitis pigmentosa? Members in the forum might have the answers.

Compare treatments taken by people with retinitis pigmentosa

Let’s build this page together! When you share what it’s like to have retinitis pigmentosa through your profile, those stories and data appear here too.

Got a question about living with retinitis pigmentosa? Members in the forum might have the answers.

Who has retinitis pigmentosa on PatientsLikeMe?

  • 0 new patients joined this month
  • 78 say retinitis pigmentosa is their primary condition

Age
Age Proportion # of patients
<20 3
20s 7
30s 20
40s 20
50s 23
60s 11
70+ 6
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 5
30-39 years 7
40-49 years 1
50-59 years 2
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 48
Female 44

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 32
Not Diagnosed 0

These charts show data from retinitis pigmentosa patients who have completed their condition history
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