Ocular melanoma

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is ocular melanoma?

Ocular melanoma is a cancer (melanoma) of the eye involving the iris, ciliary body, conjunctiva, or choroid (collectively referred to as the uvea).

Common symptoms reported by people with ocular melanoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with ocular melanoma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Image Guided Radiation)
Type
Procedures
How many have tried
3
Tried for
ocular melanoma (3)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)
Type
Surgery
How many have tried
1
Tried for
ocular melanoma (1)

Data from patients with ocular melanoma, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with ocular melanoma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Image Guided Radiation)
Perceived effectiveness
for ocular melanoma (2 evaluations)
Side effects
blurry vision eyelashes falling out 1 more
Total evaluations
2
Tried for
ocular melanoma (3)
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
ocular melanoma (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with ocular melanoma, who reported starting treatments within the last 5 years.
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Who has ocular melanoma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 7
40s 14
50s 11
60s 24
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 1
30-39 years 5
40-49 years 7
50-59 years 12
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 22
Female 40

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 34
Not Diagnosed 2

These charts show data from ocular melanoma patients who have completed their condition history
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