Essential thrombocythemia

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What is essential thrombocythemia?

Essential thrombocythemia is a rare blood disorder characterized by an increased platelet count in the blood due to overproduction of platelets in the bone marrow. For this reason it is considered a myeloproliferative disorder.

Common symptoms reported by people with essential thrombocythemia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with essential thrombocythemia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Aspirin Low Dose)
Type
Over the Counter Drug
How many have tried
8
Treatment name(s)

(Hydrea)
Type
Prescription Drug
How many have tried
5
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
fatigue (2)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
pain (1)

Data from patients with essential thrombocythemia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with essential thrombocythemia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Aspirin Low Dose)
Perceived effectiveness
for essential thrombocythemia (4 evaluations)
Side effects
esophageal varices stomach pain
Total evaluations
4
Treatment name(s)

(Hydrea)
Perceived effectiveness
for essential thrombocythemia (5 evaluations)
Side effects
fatigue balance problems 6 more
Total evaluations
5
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
dry mouth shakiness 1 more
Total evaluations
2
Tried for
fatigue (2)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (2)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Marijuana)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Valium)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
sexual dysfunction weight gain
Total evaluations
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
balance problems essential thrombocythemia 2 more
Total evaluations
1
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with essential thrombocythemia, who reported starting treatments within the last 5 years.
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Who has essential thrombocythemia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 3
30s 24
40s 35
50s 37
60s 48
70+ 26
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 13
30-39 years 10
40-49 years 14
50-59 years 5
60-69 years 3
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 37
Female 137

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 80
Not Diagnosed 1

These charts show data from essential thrombocythemia patients who have completed their condition history
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