Prader-Willi syndrome

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What is Prader-Willi syndrome?

Prader-Willi syndrome is a complex genetic disorder characterized by weak muscle tone, poor growth and delayed development. It causes a constant feeling of hunger that leads to chronic overeating and obesity.

Common symptoms reported by people with Prader-Willi syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Prader-Willi syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with Prader-Willi syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Prader-Willi syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
muscle pain in arms muscle pain in arms and legs after doing anything with them for short periods of time 1 more
Total evaluations
1
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Prader-Willi syndrome, who reported starting treatments within the last 5 years.
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Who has Prader-Willi syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 8
20s 5
30s 2
40s 2
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 6
Female 11

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9
Not Diagnosed 0

These charts show data from Prader-Willi syndrome patients who have completed their condition history
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