Hidradenitis suppurativa

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What is hidradenitis suppurativa?

Hidradenitis suppurativa chronic inflammatory skin disorder that primarily affects the underarm, groin, perineum, and area under the breasts. As the disease becomes chronic, ulcers appear, sinus tracts enlarge, fistulas develop, and fibrosis and scarring become evident.

Common symptoms reported by people with hidradenitis suppurativa

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hidradenitis suppurativa

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Clindamycin PH 1% Gel)
Type
Prescription Drug
How many have tried
7
Tried for
hidradenitis suppurativa (7)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
5
Tried for
pain (5)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4) depressed mood (1)
Treatment name(s)

(Doxylin)
Type
Prescription Drug
How many have tried
4
Tried for
hidradenitis suppurativa (4)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
4
Tried for
pain (3) hidradenitis suppurativa (1)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
3
Tried for
fatigue (2) depressed mood (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
3
Tried for
pain (3) anxious mood (1)
1 more
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (3) pain (2)

Data from patients with hidradenitis suppurativa, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hidradenitis suppurativa

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Clindamycin PH 1% Gel)
Perceived effectiveness
for hidradenitis suppurativa (5 evaluations)
Side effects
aftertaste clostridium difficile
Total evaluations
5
Tried for
hidradenitis suppurativa (7)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (5)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (2 evaluations)
Side effects
blurry vision drowsiness 1 more
Total evaluations
2
Tried for
pain (4) depressed mood (1)
Treatment name(s)

(Doxylin)
Perceived effectiveness
for hidradenitis suppurativa (3 evaluations)
Side effects
upset stomach mouth sores (ulcers) 1 more
Total evaluations
3
Tried for
hidradenitis suppurativa (4)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (6 evaluations)
Side effects
sleepiness
Total evaluations
6
Tried for
pain (3) hidradenitis suppurativa (1)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (3)
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (3 evaluations)
Side effects
muscle spasms in legs sinus tachycardia
Total evaluations
4
Tried for
fatigue (2) depressed mood (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for pain (4 evaluations)
Side effects
anxious mood tiredness increased
Total evaluations
4
Tried for
pain (3) anxious mood (1)
1 more
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
for pain (2 evaluations)
Side effects
constipation fainting 1 more
Total evaluations
2
Tried for
pain (3)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (13 evaluations)
Side effects
daytime sleepiness dizziness
Total evaluations
14
Tried for
depressed mood (3) pain (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hidradenitis suppurativa, who reported starting treatments within the last 5 years.
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Who has hidradenitis suppurativa on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 41
30s 97
40s 114
50s 60
60s 16
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 89
20-29 years 56
30-39 years 29
40-49 years 15
50-59 years 3
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 40
Female 295

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 210
Not Diagnosed 23

These charts show data from hidradenitis suppurativa patients who have completed their condition history
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