Peripheral nerve hyperexcitability

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is peripheral nerve hyperexcitability?

Peripheral nerve hyperexcitability is a generalized term that is used to cover a spectrum of disorders that exhibit the symptoms of neuromyotonia, benign fasciculation syndrome and cramp fasciculation.

Common symptoms reported by people with peripheral nerve hyperexcitability

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with peripheral nerve hyperexcitability

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)
Type
Other
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Manual fold up)
Type
Equipment
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Permobil C300)
Type
Equipment
How many have tried
1
Tried for
fatigue (1)

Data from patients with peripheral nerve hyperexcitability, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with peripheral nerve hyperexcitability

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
brain fog fluid retention weight gain
Total evaluations
2
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (5 evaluations)
Side effects
dizziness
Total evaluations
5
Tried for
anxious mood (1)
Treatment name(s)

(Inderal)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Manual fold up)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Permobil C300)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with peripheral nerve hyperexcitability, who reported starting treatments within the last 5 years.
Last updated:

Who has peripheral nerve hyperexcitability on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 1
30s 3
40s 3
50s 10
60s 7
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 0
30-39 years 2
40-49 years 1
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 10
Female 19

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9
Not Diagnosed 0

These charts show data from peripheral nerve hyperexcitability patients who have completed their condition history
Last updated: