Polycythemia vera

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What is polycythemia vera?

Polycythemia vera is an abnormal increase in the number of blood cells (primarily red blood cells) produced by the bone marrow.

Common symptoms reported by people with polycythemia vera

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with polycythemia vera

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Aspirin Low Dose)
Type
Over the Counter Drug
How many have tried
7
Tried for
polycythemia vera (7)
Treatment name(s)
Type
Procedures
How many have tried
4
Tried for
polycythemia vera (4)
Treatment name(s)

(Hydrea)
Type
Prescription Drug
How many have tried
3
Tried for
polycythemia vera (3)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Equipment
How many have tried
1
Tried for
polycythemia vera (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Prescription Drug
How many have tried
1
Tried for
polycythemia vera (1)
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)

Data from patients with polycythemia vera, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with polycythemia vera

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Aspirin Low Dose)
Perceived effectiveness
for polycythemia vera (2 evaluations)
Side effects
Total evaluations
2
Tried for
polycythemia vera (7)
Treatment name(s)
Perceived effectiveness
for polycythemia vera (1 evaluation)
Side effects
Total evaluations
1
Tried for
polycythemia vera (4)
Treatment name(s)

(Hydrea)
Perceived effectiveness
for polycythemia vera (3 evaluations)
Side effects
nausea sweating
Total evaluations
3
Tried for
polycythemia vera (3)
Treatment name(s)
Perceived effectiveness
for fatigue (5 evaluations)
Side effects
constipation feet tingling 1 more
Total evaluations
5
Tried for
fatigue (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)
Perceived effectiveness
for pain (1 evaluation)
Side effects
pain
Total evaluations
1
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
for polycythemia vera (1 evaluation)
Side effects
Total evaluations
3
Tried for
polycythemia vera (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (5 evaluations)
Side effects
aphasia stumbling 1 more
Total evaluations
5
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
for polycythemia vera (2 evaluations)
Side effects
bowel irritability heart palpitations 2 more
Total evaluations
2
Tried for
polycythemia vera (1)
Treatment name(s)

(Provigil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with polycythemia vera, who reported starting treatments within the last 5 years.
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Who has polycythemia vera on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 11
30s 12
40s 28
50s 54
60s 45
70+ 39
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 9
30-39 years 12
40-49 years 20
50-59 years 22
60-69 years 9
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 63
Female 129

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 105
Not Diagnosed 6

These charts show data from polycythemia vera patients who have completed their condition history
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