Pancreatic neuroendocrine tumor

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What is pancreatic neuroendocrine tumor?

Pancreatic neuroendocrine tumors are a type of neuroendocrine tumor found in the pancreas. Some tumors are functional, which means they produce excess hormones that can lead to a variety of hormone-related symptoms. There are several types of functional neuroendocrine tumors.

Common symptoms reported by people with pancreatic neuroendocrine tumor

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with pancreatic neuroendocrine tumor

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sandostatin)
Type
Prescription Drug
How many have tried
5
Treatment name(s)

(Xeloda)
Type
Prescription Drug
How many have tried
1
Treatment name(s)
Type
Surgery
How many have tried
1
Treatment name(s)

(Temodar)
Type
Prescription Drug
How many have tried
1

Data from patients with pancreatic neuroendocrine tumor, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with pancreatic neuroendocrine tumor

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sandostatin)
Perceived effectiveness
for pancreatic neuroendocrine tumor (1 evaluation)
Side effects
fatigue nausea
Total evaluations
1
Treatment name(s)

(Xeloda)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)
Perceived effectiveness
for pancreatic neuroendocrine tumor (1 evaluation)
Side effects
Hospitalization
Total evaluations
1
Treatment name(s)

(Temodar)
Perceived effectiveness
for pancreatic neuroendocrine tumor (1 evaluation)
Side effects
fatigue nausea and vomiting
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with pancreatic neuroendocrine tumor, who reported starting treatments within the last 5 years.
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Who has pancreatic neuroendocrine tumor on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 11
40s 21
50s 38
60s 44
70+ 22
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 3
30-39 years 2
40-49 years 4
50-59 years 6
60-69 years 3
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 50
Female 90

Types
Condition Types Proportion # of patients
ACTHoma 0
Gastrinoma 0
Glucagonoma 1
GRFoma 0
Insulinoma 1
Somatostatinoma 2
VIPoma 1
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 31
Not Diagnosed 0

These charts show data from PNET patients who have completed their condition history
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