Congenital spinal stenosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is congenital spinal stenosis?

Congenital spinal stenosis is a condition in which a child is born with a narrow spinal canal due to abnormally formed parts of the spine. It tends to worsen progressively with age.

Common symptoms reported by people with congenital spinal stenosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with congenital spinal stenosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Suboxone)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Soma)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Treatment name(s)

(Naprosyn)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Stretch Yoga)
Type
Exercise
How many have tried
1

Data from patients with congenital spinal stenosis, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with congenital spinal stenosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Elavil)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Sleepiness
Total evaluations
1
Tried for
Pain (2)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (1)
Treatment name(s)

(Suboxone)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Dizziness and lightheadedness that travels up from upper back into head Nausea and dizziness
Total evaluations
1
Tried for
Pain (1)
Treatment name(s)

(Soma)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1)
Treatment name(s)

(Naprosyn)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Zoloft)
Perceived effectiveness
for Depressed mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
Depressed mood (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Stretch Yoga)
Perceived effectiveness
for congenital spinal stenosis (2 evaluations)
Side effects
Back pain
Total evaluations
2
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with congenital spinal stenosis, who reported starting treatments within the last 5 years.
Last updated:

Who has congenital spinal stenosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 2
30s 8
40s 14
50s 17
60s 18
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 7
30-39 years 7
40-49 years 6
50-59 years 6
60-69 years 1
70+ years 0

Sex

Distribution of sex

83% Female
17% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 47
Not Diagnosed 0

These charts show data from congenital spinal stenosis patients who have completed their condition history
Last updated: