Cataplexy

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Cataplexy?

Cataplexy is the sudden loss of muscle tone that is triggered by the experience of an intense emotion. Cataplexy is the result of an absence of a neurotransmitter in the hypothalamus known as hypocretin or orexin. It is often associated with narcolepsy but is seen in other pathological conditions.

Common symptoms reported by people with Cataplexy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Cataplexy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Xyrem)
Type
Prescription Drug
How many have tried
5
Tried for
Cataplexy (5)
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
Fatigue (2)
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Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
2
Tried for
Fatigue (2)
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Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (2)
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
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Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
2
Tried for
Cataplexy (2)
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Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
Cataplexy (1)
Check to add this treatment to your profile
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)

Data from patients with Cataplexy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Cataplexy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Xyrem)
Perceived effectiveness
for Cataplexy (2 evaluations)
Side effects
Headaches in morning Hunger 1 more
How many evaluations
2
Tried for
Cataplexy (5)
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Perceived effectiveness
for Fatigue (1 evaluation)
Side effects
Heartburn Restlessness
How many evaluations
2
Tried for
Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Nuvigil)
Perceived effectiveness
for Fatigue (2 evaluations)
Side effects
Headaches Restlessness
How many evaluations
2
Tried for
Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for Cataplexy (2 evaluations)
Side effects
How many evaluations
2
Tried for
Cataplexy (2)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Cataplexy (1)
Check to add this treatment to your profile
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
How many evaluations
1
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
Dizziness with hypotension upon standing Drowsiness
How many evaluations
2
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)

Data from patients with Cataplexy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Cataplexy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 15
30s 18
40s 21
50s 4
60s 4
70+ 1

Sex

Distribution of sex

77% Female
23% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 19
20-29 years 13
30-39 years 7
40-49 years 5
50-59 years 0
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48
Not Diagnosed 5

These charts show data from Cataplexy patients who have completed their condition history
Last updated: