Hirschsprung's disease

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What is Hirschsprung's disease?

Hirschsprung's disease is a congenital condition associated with the absence of certain nerve cells in the lower intestine that fail to develop and mature correctly causing partial or complete bowel obstruction due to lack of function.

Common symptoms reported by people with Hirschsprung's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Hirschsprung's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with Hirschsprung's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Hirschsprung's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
dizziness with disorientation drug induced psychosis 1 more
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for pain (1 evaluation)
Side effects
increased appetite
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Hirschsprung's disease, who reported starting treatments within the last 5 years.
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Who has Hirschsprung's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 8
30s 3
40s 3
50s 3
60s 0
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 7
Female 17

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12
Not Diagnosed 1

These charts show data from Hirschsprung's disease patients who have completed their condition history
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