CVID (Common Variable Immunodeficiency Disorder)

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What is CVID (Common Variable Immunodeficiency Disorder)?

Common variable immunodeficiency (CVID) is a primary immunodeficiency, a disorder in which part of the body's immune system is missing or does not function properly. CVID is believed to be a genetically determined primary immune defect; however, the underlying causes are different.

Common symptoms reported by people with CVID (Common Variable Immunodeficiency Disorder)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with CVID (Common Variable Immunodeficiency Disorder)

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
18
Check to add this treatment to your profile
Treatment name(s)

(Hizentra)
Type
Prescription Drug
How many have tried
10
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
Fatigue (2)
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Treatment name(s)

(Benadryl)
Type
Over the Counter Drug
How many have tried
2
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Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
2
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Type
Prescription Drug
How many have tried
2
Tried for
Insomnia (2)
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
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Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)

Data from patients with CVID (Common Variable Immunodeficiency Disorder), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with CVID (Common Variable Immunodeficiency Disorder)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for CVID (Common Variable Immunodeficiency Disorder) (10 evaluations)
Side effects
Fatigue Nausea 15 more
How many evaluations
11
Check to add this treatment to your profile
Treatment name(s)

(Hizentra)
Perceived effectiveness
for CVID (Common Variable Immunodeficiency Disorder) (4 evaluations)
Side effects
Fatigue Joint pain 2 more
How many evaluations
4
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Perceived effectiveness
for Fatigue (1 evaluation)
Side effects
Anxious mood Decreased appetite 3 more
How many evaluations
1
Tried for
Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Benadryl)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Daytime sleepiness
How many evaluations
1
Check to add this treatment to your profile
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for Fatigue (2 evaluations)
Side effects
How many evaluations
2
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Insomnia (2)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)

Data from patients with CVID (Common Variable Immunodeficiency Disorder), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has CVID (Common Variable Immunodeficiency Disorder) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 8
20s 15
30s 33
40s 66
50s 81
60s 49
70+ 12

Sex

Distribution of sex

80% Female
20% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 64
20-29 years 23
30-39 years 28
40-49 years 20
50-59 years 13
60-69 years 2
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 180
Not Diagnosed 5

These charts show data from CVID patients who have completed their condition history
Last updated: