Common variable immunodeficiency disorder

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What is common variable immunodeficiency disorder?

Common variable immunodeficiency (CVID) is a primary immunodeficiency, a disorder in which part of the body's immune system is missing or does not function properly. CVID is believed to be a genetically determined primary immune defect; however, the underlying causes are different.

Common symptoms reported by people with common variable immunodeficiency disorder

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with common variable immunodeficiency disorder

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
20
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Treatment name(s)

(Hizentra)
Type
Prescription Drug
How many have tried
10
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Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
Fatigue (2)
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Treatment name(s)

(Benadryl)
Type
Over the Counter Drug
How many have tried
2
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Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
2
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Type
Prescription Drug
How many have tried
2
Tried for
Insomnia (2)
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
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Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)

Data from patients with common variable immunodeficiency disorder, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with common variable immunodeficiency disorder

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for common variable immunodeficiency disorder (12 evaluations)
Side effects
Nausea Fatigue 17 more
Total evaluations
13
Check to add this treatment to your profile
Treatment name(s)

(Hizentra)
Perceived effectiveness
for common variable immunodeficiency disorder (4 evaluations)
Side effects
Fatigue Joint pain 2 more
Total evaluations
4
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Perceived effectiveness
for Fatigue (1 evaluation)
Side effects
Anxious mood Decreased appetite 3 more
Total evaluations
1
Tried for
Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Benadryl)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Daytime sleepiness
Total evaluations
1
Check to add this treatment to your profile
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for Fatigue (2 evaluations)
Side effects
Total evaluations
2
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Insomnia (2)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with common variable immunodeficiency disorder, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has common variable immunodeficiency disorder on PatientsLikeMe?


Age
Age Proportion # of patients
<20 8
20s 15
30s 35
40s 67
50s 86
60s 53
70+ 14
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 65
20-29 years 24
30-39 years 28
40-49 years 21
50-59 years 14
60-69 years 2
70+ years 0

Sex

Distribution of sex

80% Female
20% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 185
Not Diagnosed 5

These charts show data from common variable immunodeficiency disorder patients who have completed their condition history
Last updated: