Common variable immunodeficiency disorder

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What is common variable immunodeficiency disorder?

Common variable immunodeficiency (CVID) is a primary immunodeficiency, a disorder in which part of the body's immune system is missing or does not function properly. CVID is believed to be a genetically determined primary immune defect; however, the underlying causes are different.

Common symptoms reported by people with common variable immunodeficiency disorder

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with common variable immunodeficiency disorder

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
18
Treatment name(s)

(Hizentra)
Type
Prescription Drug
How many have tried
10
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
Fatigue (2)
Treatment name(s)

(Benadryl)
Type
Over the Counter Drug
How many have tried
2
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1)
Treatment name(s)

(BuTrans Transdermal Patch)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)

Data from patients with common variable immunodeficiency disorder, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with common variable immunodeficiency disorder

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for common variable immunodeficiency disorder (13 evaluations)
Side effects
Flu like symptoms Headaches 16 more
Total evaluations
14
Treatment name(s)

(Hizentra)
Perceived effectiveness
for common variable immunodeficiency disorder (5 evaluations)
Side effects
Fatigue Joint pain 3 more
Total evaluations
5
Treatment name(s)

(Adderall)
Perceived effectiveness
for Fatigue (1 evaluation)
Side effects
Anxious mood Decreased appetite 3 more
Total evaluations
1
Tried for
Fatigue (2)
Treatment name(s)

(Benadryl)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Daytime sleepiness
Total evaluations
1
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for Fatigue (2 evaluations)
Side effects
Total evaluations
2
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Insomnia (1)
Treatment name(s)

(BuTrans Transdermal Patch)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with common variable immunodeficiency disorder, who reported starting treatments within the last 5 years.
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Who has common variable immunodeficiency disorder on PatientsLikeMe?


Age
Age Proportion # of patients
<20 9
20s 18
30s 36
40s 71
50s 97
60s 54
70+ 18
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 65
20-29 years 24
30-39 years 29
40-49 years 21
50-59 years 16
60-69 years 3
70+ years 0

Sex

Distribution of sex

81% Female
19% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 192
Not Diagnosed 5

These charts show data from common variable immunodeficiency disorder patients who have completed their condition history
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