Common variable immunodeficiency disorder

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What is common variable immunodeficiency disorder?

Common variable immunodeficiency (CVID) is a primary immunodeficiency, a disorder in which part of the body's immune system is missing or does not function properly. CVID is believed to be a genetically determined primary immune defect; however, the underlying causes are different.

Common symptoms reported by people with common variable immunodeficiency disorder

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with common variable immunodeficiency disorder

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
19
Treatment name(s)

(Hizentra)
Type
Prescription Drug
How many have tried
9
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
fatigue (2)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(BuTrans Transdermal Patch)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Benadryl)
Type
Over the Counter Drug
How many have tried
1
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with common variable immunodeficiency disorder, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with common variable immunodeficiency disorder

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for common variable immunodeficiency disorder (14 evaluations)
Side effects
headaches flu like symptoms 17 more
Total evaluations
15
Treatment name(s)

(Hizentra)
Perceived effectiveness
for common variable immunodeficiency disorder (5 evaluations)
Side effects
fatigue joint pain 3 more
Total evaluations
5
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
anxious mood decreased appetite 3 more
Total evaluations
1
Tried for
fatigue (2)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
Total evaluations
2
Treatment name(s)

(BuTrans Transdermal Patch)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)

(Celebrex)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (1)
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Benadryl)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with common variable immunodeficiency disorder, who reported starting treatments within the last 5 years.
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Who has common variable immunodeficiency disorder on PatientsLikeMe?


Age
Age Proportion # of patients
<20 10
20s 17
30s 37
40s 73
50s 96
60s 59
70+ 19
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 65
20-29 years 24
30-39 years 29
40-49 years 21
50-59 years 16
60-69 years 3
70+ years 0

Sex

Distribution of sex

82% Female
18% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 192
Not Diagnosed 5

These charts show data from common variable immunodeficiency disorder patients who have completed their condition history
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