Severe combined immunodeficiency disease

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What is severe combined immunodeficiency disease?

Severe Combine Immune Deficiency is a primary immune deficiency genetic disorder. The defining characteristic is usually a severe defect in both the T- & B-lymphocyte systems, which are impaired due to a defect in one of several possible genes.

Common symptoms reported by people with severe combined immunodeficiency disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with severe combined immunodeficiency disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with severe combined immunodeficiency disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with severe combined immunodeficiency disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with severe combined immunodeficiency disease, who reported starting treatments within the last 5 years.
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Who has severe combined immunodeficiency disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 3
40s 4
50s 8
60s 6
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 0
30-39 years 2
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 8
Female 15

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6
Not Diagnosed 3

These charts show data from SCID patients who have completed their condition history
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