Ectodermal dysplasia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is ectodermal dysplasia?

The ectodermal dysplasias are inherited disorders that involve abnormalities of two or more ectodermal structures such as the hair, teeth, nails, sweat glands, cranial-facial structure, digits and other parts of the body. There are more than 150 different types.

Common symptoms reported by people with ectodermal dysplasia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with ectodermal dysplasia

No data

Let’s build this page together! When you share what it’s like to have ectodermal dysplasia through your profile, those stories and data appear here too.

Got a question about living with ectodermal dysplasia? Members in the forum might have the answers.

Compare treatments taken by people with ectodermal dysplasia

No data

Let’s build this page together! When you share what it’s like to have ectodermal dysplasia through your profile, those stories and data appear here too.

Got a question about living with ectodermal dysplasia? Members in the forum might have the answers.

Who has ectodermal dysplasia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 1
30s 2
40s 0
50s 0
60s 1
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 3

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 0

These charts show data from ectodermal dysplasia patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have ectodermal dysplasia through your profile, those stories and data appear here too.

Got a question about living with ectodermal dysplasia? Members in the forum might have the answers.