MASS phenotype

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is MASS phenotype?

MASS Phenotype is a connective tissue disorder similar to Marfan syndrome. The acronym represents the conditions involved: Mitral valve prolapse, Aortic root diameter at upper limits of normal for body size, Skin stretch marks unrelated to weight gain, and Skeletal conditions.

Common symptoms reported by people with MASS phenotype

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with MASS phenotype

No data

Let’s build this page together! When you share what it’s like to have MASS phenotype through your profile, those stories and data appear here too.

Got a question about living with MASS phenotype? Members in the forum might have the answers.

Compare treatments taken by people with MASS phenotype

No data

Let’s build this page together! When you share what it’s like to have MASS phenotype through your profile, those stories and data appear here too.

Got a question about living with MASS phenotype? Members in the forum might have the answers.

Who has MASS phenotype on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 0
40s 1
50s 2
60s 0
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2
Female 2

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 0

These charts show data from MASS phenotype patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have MASS phenotype through your profile, those stories and data appear here too.

Got a question about living with MASS phenotype? Members in the forum might have the answers.