Gilbert's syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Gilbert's syndrome?

Gilbert's disease is a common disorder passed down through families. It affects the way bilirubin is processed by the liver, and is characterized by fatigue and yellowing of the skin and whites of eyes, which may come and go in response to stress, exertion and infections.

Common symptoms reported by people with Gilbert's syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Gilbert's syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
1
Tried for
depressed mood (1) pain (1)
Treatment name(s)

(DHC continus)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Nutrition/Diet
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Co-Dydramol)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)

Data from patients with Gilbert's syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Gilbert's syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
sore mouth (stomatitis)
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1) pain (1)
Treatment name(s)

(DHC continus)
Perceived effectiveness
for pain (3 evaluations)
Side effects
constipation
Total evaluations
3
Tried for
pain (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (2 evaluations)
Side effects
fatigue pain
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Advil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Co-Dydramol)
Perceived effectiveness
for pain (1 evaluation)
Side effects
constipation
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Gilbert's syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has Gilbert's syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 23
30s 23
40s 22
50s 18
60s 10
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 14
20-29 years 16
30-39 years 7
40-49 years 2
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 57
Female 47

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 59
Not Diagnosed 2

These charts show data from Gilbert's syndrome patients who have completed their condition history
Last updated: