Henoch-Schonlein purpura

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Henoch-Schonlein purpura?

Henoch-Schoenlein purpura (HSP) is a systemic vasculitis (inflammation of blood vessels) that is due to deposits of the antibody IgA in the small vessels and kidneys. Patients present with a rash (purpura) caused by small hemorrhages in the skin.

Common symptoms reported by people with Henoch-Schonlein purpura

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Henoch-Schonlein purpura

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
1
Tried for
Henoch-Schonlein purpura (1)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
1
Tried for
Henoch-Schonlein purpura (1)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)

Data from patients with Henoch-Schonlein purpura, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Henoch-Schonlein purpura

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(CellCept)
Perceived effectiveness
No evaluations
Side effects
nausea
Total evaluations
1
Tried for
Henoch-Schonlein purpura (1)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for Henoch-Schonlein purpura (1 evaluation)
Side effects
depressed mood weight gain
Total evaluations
1
Tried for
Henoch-Schonlein purpura (1)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
nausea
Total evaluations
1
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Henoch-Schonlein purpura, who reported starting treatments within the last 5 years.
Last updated:

Who has Henoch-Schonlein purpura on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 4
30s 14
40s 11
50s 9
60s 3
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 7
30-39 years 3
40-49 years 1
50-59 years 2
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 17
Female 29

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 28
Not Diagnosed 1

These charts show data from Henoch-Schonlein purpura patients who have completed their condition history
Last updated: