Lewy body disease

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What is Lewy body disease?

Dementia with Lewy bodies is characterized by cognitive decline, recurrent visual hallucinations, postural instability, gait difficulties, masked facial expression, rapid eye movement sleep behavioral disorder, and antipsychotic sensitivity.

Common symptoms reported by people with Lewy body disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Lewy body disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Exelon Patch)
Type
Prescription Drug
How many have tried
2
Tried for
Lewy body disease (2)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
1
Tried for
Lewy body disease (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) Lewy body disease (1)
Treatment name(s)

(Aricept)
Type
Prescription Drug
How many have tried
1
Tried for
Lewy body disease (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Seroquel)
Type
Prescription Drug
How many have tried
1
Tried for
Lewy body disease (1)

Data from patients with Lewy body disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Lewy body disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Exelon Patch)
Perceived effectiveness
for Lewy body disease (1 evaluation)
Side effects
Total evaluations
1
Tried for
Lewy body disease (2)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Sinemet)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Lewy body disease (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) Lewy body disease (1)
Treatment name(s)

(Aricept)
Perceived effectiveness
for Lewy body disease (1 evaluation)
Side effects
sleeplessness
Total evaluations
1
Tried for
Lewy body disease (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Seroquel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Lewy body disease (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Lewy body disease, who reported starting treatments within the last 5 years.
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Who has Lewy body disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 2
50s 4
60s 27
70+ 34
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 1
40-49 years 3
50-59 years 7
60-69 years 6
70+ years 4

Sex

Distribution of sex

29% Female
71% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 21
Not Diagnosed 4

These charts show data from Lewy body disease patients who have completed their condition history
Last updated: