Tardive dyskinesia

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What is tardive dyskinesia?

Tardive dyskinesia is a neurological syndrome caused by the long-term use of medications prescribed for psychiatric disorders, as well as for some gastrointestinal and neurological disorders. It is is characterized by repetitive, involuntary, purposeless movements such as lip smacking and grimaces.

Common symptoms reported by people with tardive dyskinesia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with tardive dyskinesia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
4
Tried for
Anxious mood (4)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (2) Depressed mood (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (3)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (1) Fatigue (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
2
Tried for
Anxious mood (2)
Treatment name(s)

(Spinal Chiropractic Therapy)
Type
Physical Therapy
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
2
Tried for
Anxious mood (2)
Treatment name(s)

(Latuda)
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (2)
Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
2
Tried for
Insomnia (2)
Treatment name(s)

(Ambien)
Type
Prescription Drug
How many have tried
2
Tried for
Insomnia (2)

Data from patients with tardive dyskinesia, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with tardive dyskinesia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (2 evaluations)
Side effects
Drooling especially at night
Total evaluations
2
Tried for
Anxious mood (4)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Dizziness/walking like I'm drunk Low Testosterone 4 more
Total evaluations
4
Tried for
Pain (2) Depressed mood (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
Pain (3)
Treatment name(s)

(Adderall)
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
Total evaluations
2
Tried for
Depressed mood (1) Fatigue (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
Anxious mood (2)
Treatment name(s)

(Spinal Chiropractic Therapy)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
Pain (2)
Treatment name(s)

(Ativan)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Tiredness
Total evaluations
1
Tried for
Anxious mood (2)
Treatment name(s)

(Latuda)
Perceived effectiveness
for Depressed mood (16 evaluations)
Side effects
Decreased sex drive (libido) Difficulty sleeping through night 7 more
Total evaluations
16
Tried for
Depressed mood (2)
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (2 evaluations)
Side effects
Drugged feeling
Total evaluations
2
Tried for
Insomnia (2)
Treatment name(s)

(Ambien)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Insomnia (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with tardive dyskinesia, who reported starting treatments within the last 5 years.
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Who has tardive dyskinesia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 11
30s 24
40s 22
50s 24
60s 33
70+ 12
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 6
30-39 years 9
40-49 years 11
50-59 years 15
60-69 years 4
70+ years 1

Sex

Distribution of sex

76% Female
24% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 41
Not Diagnosed 13

These charts show data from tardive dyskinesia patients who have completed their condition history
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