Tardive dyskinesia

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What is tardive dyskinesia?

Tardive dyskinesia is a neurological syndrome caused by the long-term use of medications prescribed for psychiatric disorders, as well as for some gastrointestinal and neurological disorders. It is is characterized by repetitive, involuntary, purposeless movements such as lip smacking and grimaces.

Common symptoms reported by people with tardive dyskinesia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with tardive dyskinesia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (4)
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
3
Tried for
tardive dyskinesia (3)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (1) fatigue (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Spinal Chiropractic Therapy)
Type
Physical Therapy
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)

Data from patients with tardive dyskinesia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with tardive dyskinesia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
drooling especially at night
Total evaluations
2
Tried for
anxious mood (4)
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for tardive dyskinesia (1 evaluation)
Side effects
anxious mood
Total evaluations
1
Tried for
tardive dyskinesia (3)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
dizziness/walking like I'm drunk vertigo 1 more
Total evaluations
1
Tried for
pain (3)
Treatment name(s)

(Adderall)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1) fatigue (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (2)
Treatment name(s)

(Spinal Chiropractic Therapy)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
tiredness increased
Total evaluations
2
Tried for
depressed mood (2)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Advil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
tiredness
Total evaluations
1
Tried for
anxious mood (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with tardive dyskinesia, who reported starting treatments within the last 5 years.
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Who has tardive dyskinesia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 11
30s 25
40s 22
50s 35
60s 36
70+ 13
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 6
30-39 years 11
40-49 years 13
50-59 years 15
60-69 years 4
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 29
Female 113

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 50
Not Diagnosed 11

These charts show data from tardive dyskinesia patients who have completed their condition history
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