Myotonia congenita

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is myotonia congenita?

Myotonia congenita is a disorder that affects muscles used for movement (skeletal muscles). Beginning in childhood, people with this condition experience bouts of sustained muscle tensing (myotonia) that prevent muscles from relaxing normally.

Common symptoms reported by people with myotonia congenita

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with myotonia congenita

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)

Data from patients with myotonia congenita, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with myotonia congenita

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Celexa)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with myotonia congenita, who reported starting treatments within the last 5 years.
Last updated:

Who has myotonia congenita on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 9
30s 9
40s 11
50s 12
60s 5
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 2
30-39 years 1
40-49 years 2
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 24
Female 25

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 17
Not Diagnosed 2

These charts show data from myotonia congenita patients who have completed their condition history
Last updated: