Myositis

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Myositis?

Myositis is a general term that means inflammation of the muscles. It may be associated with inflammation in other organs, including the joints, heart, lungs, intestines and skin.

Common symptoms reported by people with Myositis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Myositis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
7
Tried for
Myositis (7)
Check to add this treatment to your profile
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
3
Tried for
Myositis (3)
Check to add this treatment to your profile
Treatment name(s)

(BuTrans Transdermal Patch)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Lunesta)
Type
Prescription Drug
How many have tried
2
Tried for
Insomnia (2)
Check to add this treatment to your profile
Treatment name(s)

(Myofascial release)
Type
Physical Therapy
How many have tried
2
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
1
Tried for
Fatigue (1)

Data from patients with Myositis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Myositis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Perceived effectiveness
for Myositis (2 evaluations)
Side effects
Constipation Excessive sweating 10 more
How many evaluations
8
Tried for
Myositis (7)
Check to add this treatment to your profile
Treatment name(s)

(Mobic)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Nausea and dizziness
How many evaluations
3
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
No evaluations
Side effects
Pain
How many evaluations
1
Tried for
Myositis (3)
Check to add this treatment to your profile
Treatment name(s)

(BuTrans Transdermal Patch)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Lunesta)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
How many evaluations
1
Tried for
Insomnia (2)
Check to add this treatment to your profile
Treatment name(s)

(Myofascial release)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Soreness
How many evaluations
1
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
No evaluations
Side effects
Soreness
How many evaluations
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Abilify)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Nuvigil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Fatigue (1)

Data from patients with Myositis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myositis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 5
30s 15
40s 35
50s 37
60s 17
70+ 5

Sex

Distribution of sex

87% Female
13% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 7
20-29 years 9
30-39 years 14
40-49 years 21
50-59 years 9
60-69 years 1
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 70
Not Diagnosed 8

These charts show data from Myositis patients who have completed their condition history
Last updated: